Posted: Tue Feb 05, 2008 4:22 pm
Thanks for all your comments!
Its really a tough choice for each of us to get on one or the other regime.
In every group (Campath, HDC, Tovaxin, Tysabri, ABX, Statines) there are people that had seen very good results and there is rational for each underlying disease mechanism.
So what does this tell you to do? Give any drug a try to see what works for you and accept the possibility of serious sideeffects? Or be more passive and wait for your MS to take away another function of your body?
In addition some drugs (like Campath) seem to work much better the sooner in the disease process you take it - so you might loose this option if you wait for too long.
This may be relatively easy with ABX or Tovaxin because they dont have too serious sideeffects. Campath and HDC also seem very effective but on a serious price and what if I CPn really caused my MS and I already eliminated it. The worst thing is that there is no test to make you sure about anything - you can just wait and see.
It would surely be questionable to take Campath or HDC "just" to be on the safe side.
On the other hand it would also be bad to stick with the ABX and slowly deteriorate because my MS is really a defect of my immunesystem that could have been resolved by agressive immunetherapy?
I will certainly continue the ABX until I have completed one year. In the meantime I will see how I'm doing in spring/summer and what other therapy options will be availabe in germany.
--Frank
Its really a tough choice for each of us to get on one or the other regime.
In every group (Campath, HDC, Tovaxin, Tysabri, ABX, Statines) there are people that had seen very good results and there is rational for each underlying disease mechanism.
So what does this tell you to do? Give any drug a try to see what works for you and accept the possibility of serious sideeffects? Or be more passive and wait for your MS to take away another function of your body?
In addition some drugs (like Campath) seem to work much better the sooner in the disease process you take it - so you might loose this option if you wait for too long.
This may be relatively easy with ABX or Tovaxin because they dont have too serious sideeffects. Campath and HDC also seem very effective but on a serious price and what if I CPn really caused my MS and I already eliminated it. The worst thing is that there is no test to make you sure about anything - you can just wait and see.
It would surely be questionable to take Campath or HDC "just" to be on the safe side.
On the other hand it would also be bad to stick with the ABX and slowly deteriorate because my MS is really a defect of my immunesystem that could have been resolved by agressive immunetherapy?
I will certainly continue the ABX until I have completed one year. In the meantime I will see how I'm doing in spring/summer and what other therapy options will be availabe in germany.
--Frank