Merely anecdotal
Posted: Mon Sep 20, 2004 3:20 am
I would just like to say that I only started my posts because of the results of my MRI scan 6 months after starting antibiotic treatment. No misdiagnosis possible here, having seen the original scans. Nobody on that thread seemed inclined to raise a debate: was I supposed to start one myself? I am too busy working to spend all day arguing with myself. I was talking solely from my own experience, which I thought some people might like to share. Merely anecdotal perhaps, but I can't help that.
Once one has been diagnosed with progressive MS in the UK, none of the ABCRs are available. The only possible treatment as and when needed is intravenous steroids. Other than that, it is an appointment with the MS nurse, then go away and get on with whatever the disease throws at you. When my husband started me on antibiotics it was not with any expectation of success. However, we became more hopeful when I started a Herxheimer reaction very soon afterwards, showing that there was a chronic infection somewhere.
No-one has ever claimed that Cpn was responsible for all MS; MS could well be polymicrobial. Cpn makes holes in small blood vessels (you can see this in retinal vasculitis where a fluorescein dye test is used) and makes holes in the BB barrier (that is what causes the white spots in a Gd enhanced MRI scan) and other blood-borne organisms could get into the brain through these holes. Even dormant viruses, which are very much smaller.
Sarah
Once one has been diagnosed with progressive MS in the UK, none of the ABCRs are available. The only possible treatment as and when needed is intravenous steroids. Other than that, it is an appointment with the MS nurse, then go away and get on with whatever the disease throws at you. When my husband started me on antibiotics it was not with any expectation of success. However, we became more hopeful when I started a Herxheimer reaction very soon afterwards, showing that there was a chronic infection somewhere.
No-one has ever claimed that Cpn was responsible for all MS; MS could well be polymicrobial. Cpn makes holes in small blood vessels (you can see this in retinal vasculitis where a fluorescein dye test is used) and makes holes in the BB barrier (that is what causes the white spots in a Gd enhanced MRI scan) and other blood-borne organisms could get into the brain through these holes. Even dormant viruses, which are very much smaller.
Sarah