Posted: Sat Sep 29, 2007 10:49 am
Hi Ken,
Firstly In want to say what good job you have made of this, yet at the same time ask if it is all really necessary for presenting to a likely physician. My experience of them, in this country at any rate, is that they are painfully short of time and don't take kindly to patients or families of patients dumping volumes of information on them. Their eyes just glaze over. Its not that they aren't interested, but they just don't have the time.
Maybe the thing to do is first to show the chosen doctor just David's treatment pdf and the two papers cowritten by him and Stratton. This excellent review can then be shown once interest is aroused, in order to find out more about what is essentially a new treatment. There are so few treatment options for someone like Kim that this should be all that is required in the first instance. The thing to do is get her started on the treatment as soon as possible and these three papers have worked wonders in this country, the USA, Israel and several European countries. Once started, the doctor will have time to look further into it and the non-medical notebook is an excellent idea for friends and family.
Good thing to opt for the doctor husband of Kim's friend, though, rather than a neurologist, just because Kim is has MS and "neurologists are the ones who treat people with MS."
In your questions about supplements, yes, it does look about right although I think charcoal can just be taken as required, as much as required, but definitely on an empty stomach.
1) Recommended fish oil is 4000mg a day. I must tell David that he doesn't mention amounts.
2)Calcium and magnesium supplements are best not taken with doxycycline. Small amounts of calcium in milk or other food are OK though. I often took mine with a glass of milk because it is better to line the stomach so as not to feel sick.
3)I don't know how much lactobacillus Vitamin Shoppe recommend, but again, it can be increased as needed. I probably needed less because I ate loads of live yogurt. You will need some on a regular basis, though, because abx will wipe out the bowel flora. You don't wait for candida t rear its ugly head.
4)Yes, I never took oregano oil!
5)I never took quercetin either, but with bioflavanoids, relied on the amount in vitamin C capsules with added bioflavanoids.
6)Probably as a response to secondary porphyria. I took yaeyama chlorella instead because you don't need to take that on an empty stomach. I was taking it before we read Stratton's recommendations on charcoal. This is maybe why I never felt any benefit from taking charcoal.
7) Yes! I just went to look at my Bcomplex. It does have some B5 but I don't imagine the treatment wouldn't have worked unless it did.
When David first designed his regime NAC was not included. I went for eighteen months without taking it. He added it as a non abx alternative to amoxicillin, at that time use by Stratton.
It would be very hard to overdose on B12, being water soluble. At first I had injections once a week at the GP's practice. More is absorbed this way, but in the UK methylcobalamin was not available, so I decided to change to sublingual, but taken every day to keep up the rates in my system. David saw that I was doing this and also knew that many GPs balked at prescribing it, so he changed his regime to sublingual methylcobalamin. I never tapered the B12, because I have this thing about neuroectoderm: CPn Help/neural_ectoderm_and_my_ha
As far as the "second year" goes, only do this when reactions to metronidazole or tinidazole have stopped.
Sarah
Firstly In want to say what good job you have made of this, yet at the same time ask if it is all really necessary for presenting to a likely physician. My experience of them, in this country at any rate, is that they are painfully short of time and don't take kindly to patients or families of patients dumping volumes of information on them. Their eyes just glaze over. Its not that they aren't interested, but they just don't have the time.
Maybe the thing to do is first to show the chosen doctor just David's treatment pdf and the two papers cowritten by him and Stratton. This excellent review can then be shown once interest is aroused, in order to find out more about what is essentially a new treatment. There are so few treatment options for someone like Kim that this should be all that is required in the first instance. The thing to do is get her started on the treatment as soon as possible and these three papers have worked wonders in this country, the USA, Israel and several European countries. Once started, the doctor will have time to look further into it and the non-medical notebook is an excellent idea for friends and family.
Good thing to opt for the doctor husband of Kim's friend, though, rather than a neurologist, just because Kim is has MS and "neurologists are the ones who treat people with MS."
In your questions about supplements, yes, it does look about right although I think charcoal can just be taken as required, as much as required, but definitely on an empty stomach.
1) Recommended fish oil is 4000mg a day. I must tell David that he doesn't mention amounts.
2)Calcium and magnesium supplements are best not taken with doxycycline. Small amounts of calcium in milk or other food are OK though. I often took mine with a glass of milk because it is better to line the stomach so as not to feel sick.
3)I don't know how much lactobacillus Vitamin Shoppe recommend, but again, it can be increased as needed. I probably needed less because I ate loads of live yogurt. You will need some on a regular basis, though, because abx will wipe out the bowel flora. You don't wait for candida t rear its ugly head.
4)Yes, I never took oregano oil!
5)I never took quercetin either, but with bioflavanoids, relied on the amount in vitamin C capsules with added bioflavanoids.
6)Probably as a response to secondary porphyria. I took yaeyama chlorella instead because you don't need to take that on an empty stomach. I was taking it before we read Stratton's recommendations on charcoal. This is maybe why I never felt any benefit from taking charcoal.
7) Yes! I just went to look at my Bcomplex. It does have some B5 but I don't imagine the treatment wouldn't have worked unless it did.
When David first designed his regime NAC was not included. I went for eighteen months without taking it. He added it as a non abx alternative to amoxicillin, at that time use by Stratton.
It would be very hard to overdose on B12, being water soluble. At first I had injections once a week at the GP's practice. More is absorbed this way, but in the UK methylcobalamin was not available, so I decided to change to sublingual, but taken every day to keep up the rates in my system. David saw that I was doing this and also knew that many GPs balked at prescribing it, so he changed his regime to sublingual methylcobalamin. I never tapered the B12, because I have this thing about neuroectoderm: CPn Help/neural_ectoderm_and_my_ha
As far as the "second year" goes, only do this when reactions to metronidazole or tinidazole have stopped.
Sarah