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Posted: Sun Oct 24, 2004 11:35 am
by Daunted
I will be probably be having another LP early next year and so I will have them test me for cPn- but it's a little strange how you are claiming that this diagnostic test is valuable while at the same time recommending empirical treatment without the test because cPn is so "difficult to detect".
I'm just a bit confused as to what to believe. (I'd love to skip the LP for instance!!)
Here is the website I was referring to before:
http://home.earthlink.net/~robert016/ms.htm
It's not all that polished but has some interesting information.
Posted: Sun Oct 24, 2004 2:15 pm
by SarahLonglands
No, I am not recommending empirical treatment, but just stating a fact: C Pn is very difficult to detect, especially if one is talking about MS. I was abandoned by my neurologist as being beyond treatment, let us not forget, even if he had thought there was anything in the antibiotic theory. He didn't and wouldn't have even thought it worthwhile give me a lumbar puncture, thank goodness. So, the only person who could treat me was a microbiologist who only had the facility to test my blood serum for C Pn antibodies. The microbiologist happens to be my husband. That is all.
Sarah
Have been taking 200mg minocycline since November 2004
Posted: Wed Feb 16, 2005 1:11 pm
by gibbledygook
Hi,
I'm not sure where the "Regimen" section is so I'm posting my results on minocycline here. I am also on Avonex. About three or four days after starting minocycline (November 2004) the nasty burning sensation in my left foot became a more bubbling sensation and is now a slight transient heat. My dodgy walking and night spasms remain although are stable.
Alex
Posted: Thu Feb 17, 2005 5:00 am
by SarahLonglands
Welcome Alex,
Its fourth down under General Interest: you just came down too far! Don't do the same on the train to Bedford, or you might end up in Sheffield.
Sarah
Minocycline Regimen
Posted: Sun Feb 27, 2005 2:15 pm
by Houdini
I too take Minocycline.
Dx'd in March 2004. Started Minocycline in June 2004 (100 mg 2x day). Started Copaxone in August 2004. Based on the story posted on this site, I started NAC yeterday (figured it can't hurt). I also take Zocor, but I'm not certain that the dosage is high enough to benefit from it's neuro-protective qualities (20 mg 1x day).
No exacerbations and no new lesions since March 2004.