This Is MS Multiple Sclerosis Knowledge & Support Community

Hi,

I have a question for those of you who are using antibiotics. The more I read, the more hopeful I am, but then I get discouraged thinking about how few doctors are on board with this-- especially for treating patients early in the RR stage of MS. I'm not comfortable with ordering them online without the support of a doctor. So, I'm curious did most of you:

Go to a doctor armed with information, print outs etc & just make your case?

Keep trying doctor after doctor until you found one who would work with you?

Just go straight to one of the few doctors you know would work with you on this, even if it meant a plane ticket?

Thanks,
g123

I am no longer on ABX's. I knew my doctor for over 10 years. I first went to him when all this was just a slight tingle in my extremities.

He was comfortable with prescribing ABX's, as the ones used in the protocol, he prescribed all the time for other conditions, so he knew how safe they were. Add to this the other option (which I was on at the time) involved injecting a serious drug three times a week.

I think he didn't have the heart to stop any glimmer of hope.

Well, I originally bought on the internet when two attempts to get doctors to prescribe for me failed. I found a doctor before the meds arrived, so I just used the internet meds as 'fill-ins' when I was late picking up each month.

Most people arm themselves with the Letter to Doctors and a few pages of info (doctors don't want to see you walk in with a phone book size package and don't have time to read that much, anyway). David Wheldon's site prints up nicely and is eminently readable.

We also have some wonderful people on abx or finished with the protocol, who can guide you toward doctors or will suggest Lyme literate doctors who will entertain the notion. Where do you live?

i am willing to travel.

g123
I would suggest that you make an appointment at Vanderbilt University if you are willing to travel. That is what I did and am so glad I did.
Lori

how frequently do you need to travel there? what kind of doctor did you see at vanderbilt? a neurologist or infectious disease specialist?

We have someone from DC doing the protocol. I emailed her and asked her to either post here or private message you regarding doctors...

But probably better to travel to Nashville. They are the best, after all.

Sarah

g123
I see Dr. Sriram, who is a neurologist. My first appointment was in December and he wanted me to come back for a follow-up appointment in 6 months, which is scheduled for June. I don't know if after that he will want to see me every 6 months or wait for a year. If you think you might want to go there you should make the appointment soon as it may take a few months to get in. I will look up the phone number for you and send it to you.
Lori