Posted: Tue Jun 08, 2010 7:00 pm
Hi, Deb,
I read your story a couple of times. It sounds like the neuro that you saw was probably Dr Luanne Metz, or one of her colleagues who is with the Uof C MS clinic, I think. I am not a medical professional by any means, but I posted my ideas here because these are the people who I learned about antibiotics from. Anecdote (Sarah), and the others helped to understand how to take the antibiotics and what to do if anything went wrong. They are the smartest peope that I know on the subject of CPn infection and the use of antibiotics in MS. I owe them all, especially Sarah, a great debt.
The studies that Ms Metz has done are superficial examinations of the use of one antibiotic, minocycline, in fighting MS. It has had good enough results. Good enought that Teva Neurosciences, the makers of Copaxone, got her off the track by paying her to study it's use with Copaxone. This study also showed good results and the MS Society made a little splash about it's effectiveness, at least here in BC. I've heard it has been listed as a recommended a treatment at the MS clinic in Kelowna. I believe that it's not a well known thing because it doesn't make anyone much money.
What is actually required is a much more rigorous, bacterial approach. Dr's Sriram, Stratton, et al, at Vanderbilt University in Nashville, Tennessee as well as David Wheldon, Sarah's husband, who is a pathologist in England have done the best work concerning antibiotics and MS. You can read a little here, but a lot of the "answer stuff" can be found over at https://CPn Help/ or at David Wheldon'site. http://www.davidwheldon.co.uk/ms-treatment1.html I started with David Wheldon's site. It's a great read,
Sarah, my doctors offered a 20% chance of restenosis, but now that I have "seen the promised land," I would happily get a balloon angioplasty every six months or on a yearly basis if I had to. Hopefully, the Canadian government will soon pick up the tab.
Getting a balloon angioplasty and then practicing bad vein health is kind of like getting liposuction so so you can eat more. I plan on keeping up the Wheldon antibiotic regime for a year, take 4,000 IU, Vit D / day, daily low dose ASA and try to live a lifestyle that promotes vein health. Now that I have healthy blood flow, maybe I'll have better luck beating the Cpn infection.
Colin.
I read your story a couple of times. It sounds like the neuro that you saw was probably Dr Luanne Metz, or one of her colleagues who is with the Uof C MS clinic, I think. I am not a medical professional by any means, but I posted my ideas here because these are the people who I learned about antibiotics from. Anecdote (Sarah), and the others helped to understand how to take the antibiotics and what to do if anything went wrong. They are the smartest peope that I know on the subject of CPn infection and the use of antibiotics in MS. I owe them all, especially Sarah, a great debt.
The studies that Ms Metz has done are superficial examinations of the use of one antibiotic, minocycline, in fighting MS. It has had good enough results. Good enought that Teva Neurosciences, the makers of Copaxone, got her off the track by paying her to study it's use with Copaxone. This study also showed good results and the MS Society made a little splash about it's effectiveness, at least here in BC. I've heard it has been listed as a recommended a treatment at the MS clinic in Kelowna. I believe that it's not a well known thing because it doesn't make anyone much money.
What is actually required is a much more rigorous, bacterial approach. Dr's Sriram, Stratton, et al, at Vanderbilt University in Nashville, Tennessee as well as David Wheldon, Sarah's husband, who is a pathologist in England have done the best work concerning antibiotics and MS. You can read a little here, but a lot of the "answer stuff" can be found over at https://CPn Help/ or at David Wheldon'site. http://www.davidwheldon.co.uk/ms-treatment1.html I started with David Wheldon's site. It's a great read,
Sarah, my doctors offered a 20% chance of restenosis, but now that I have "seen the promised land," I would happily get a balloon angioplasty every six months or on a yearly basis if I had to. Hopefully, the Canadian government will soon pick up the tab.
Getting a balloon angioplasty and then practicing bad vein health is kind of like getting liposuction so so you can eat more. I plan on keeping up the Wheldon antibiotic regime for a year, take 4,000 IU, Vit D / day, daily low dose ASA and try to live a lifestyle that promotes vein health. Now that I have healthy blood flow, maybe I'll have better luck beating the Cpn infection.
Colin.