Hi New Here.
Posted: Fri Aug 07, 2009 8:01 pm
Hello, I was Dxed with MS 5 years ago also tested Positive for Lyme at the same time. So far I have had 8 positive lyme tests and just found out I also tested Positive for CPN 2 years ago.
It has been a battle to get antibiotics no Dr in Oregon believes in my Lyme. I have travelled to Conecticut and California to see Drs to get antibiotics.
3 years ago I got IV Rocephen for 90 days and improved greatly. My MRI at that time showed almost no more lesions. I stayed on low dose antibiotics had a baby. She is 1 now and so far shows no sign of Lyme. A few months after I had her, I stopped antibiotics thinking I was better I had been symptom free for 2 years.
Boom it came back with a force. I have all new spine and brain lesions making walking very difficult. My nuero would not even consider trying antibiotics again even though they had worked so well.
So back I fly to Conecticut and the Nuero notices a Positive Clamydia Pnemanue test from 2 years ago. He now thinks that is my bigger problem over Lyme. He has put me on the Stratton/Vanderbelt Protocol for now and if my Lyme tests are still very positive propably 90 days IV antibiotics.
I am excited that I found a forum that seems open to MS, Lyme, CPN, and Antibiotics. I feel like I don't belong on anyother MS board.
My biggest problem now is trying to stomach Minocycline. I took Doxy for over a year in the begining and it did not end well with my stomach. Not sure what helps with stomach problems. I always take good probiotics.
Thank you for reading.
It has been a battle to get antibiotics no Dr in Oregon believes in my Lyme. I have travelled to Conecticut and California to see Drs to get antibiotics.
3 years ago I got IV Rocephen for 90 days and improved greatly. My MRI at that time showed almost no more lesions. I stayed on low dose antibiotics had a baby. She is 1 now and so far shows no sign of Lyme. A few months after I had her, I stopped antibiotics thinking I was better I had been symptom free for 2 years.
Boom it came back with a force. I have all new spine and brain lesions making walking very difficult. My nuero would not even consider trying antibiotics again even though they had worked so well.
So back I fly to Conecticut and the Nuero notices a Positive Clamydia Pnemanue test from 2 years ago. He now thinks that is my bigger problem over Lyme. He has put me on the Stratton/Vanderbelt Protocol for now and if my Lyme tests are still very positive propably 90 days IV antibiotics.
I am excited that I found a forum that seems open to MS, Lyme, CPN, and Antibiotics. I feel like I don't belong on anyother MS board.
My biggest problem now is trying to stomach Minocycline. I took Doxy for over a year in the begining and it did not end well with my stomach. Not sure what helps with stomach problems. I always take good probiotics.
Thank you for reading.