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Posted: Sat Sep 26, 2009 7:04 am
by MacKintosh
robbie wrote:no cats here, it's been two years or more since i've been able to use a walker even for just a couple steps.
And you DOUBTED us! You're doing swell.

Posted: Sat Sep 26, 2009 10:42 am
by Minai
Wow, Robbie! That really is big for you! Congrats...Doxy had the same effect for me, until I started the Azith. Switched to Roxy, which was much better. Wishing you the best in contiuing your progress. :)

Posted: Sat Sep 26, 2009 7:26 pm
by Bubba
My heart is with ya Bro!! Keep it up!!

Posted: Sun Sep 27, 2009 6:03 am
by scorpion
Yes! Yes! Yes! Congrats Robbie!!!!!!

Posted: Sun Sep 27, 2009 6:50 am
by Needled
Robbie, This is great, just great! I'm so happy for you. I hope you continue to improve. But my gosh, all this after just 3 weeks -- amazing!! I popped in here a couple weeks ago to check on you, and you've made so much progress. Keep at it, and keep those videos coming if you can.

Posted: Sun Sep 27, 2009 6:55 am
by carolew
congratulation Robbie. I am impressed. Keep up the good work. Hope you continue to improve...lots.... Carole

Posted: Sun Sep 27, 2009 7:35 am
by Loobie
I have no words Robbie. You and I have had many exchanges over the years and I feel really close to you; kindred spirit type of thing. It just made me cry and I had to get my wife and show her this as she keeps up with this site by proxy and she started crying too. Damn I hope you keep improving. You look real good dude. I am sooooooooo happy for you Rob, beyond words.

Posted: Sun Sep 27, 2009 8:01 am
by lyndacarol
Rob, I am so happy for you; your ability to use the walker after two years of inability is outstanding!

Disregarding the change you have made (DMD's, antibiotics, hormones, supplements, diet or insulin reduction, etc.) that you think is responsible for your improvement, the fact is you HAVE improved. For this reason (and all the other "miracle" stories), I doubt all the talk about "permanent" damage; I begin to think the lingering inabilities stem more from muscle tone than nerves.

In my own case, I think my lack of muscle tone (hypotonia) is a great contributing factor. I encourage you to exercise as much as possible. All the best to you!

(By the way, I think the intention tremor that I and many others experience is the direct result of a muscle problem -- dystonia. In my opinion, muscles play a major role in MS.)

Posted: Sun Sep 27, 2009 9:40 am
by robbie
thanks for your support everyone, iwill keep trying to improve, part of me yes yes and part of me says no this is impossible.will wait a couple more weeks and do another video and hopefully get a little strengh back in the mean time.

Posted: Sun Sep 27, 2009 9:44 am
by Katman
Robbie

It was only on the second reading that I realized this was a video and not a photogragh.

Five years ago, I was very nearly in that position - I had gone from a cane to a walker and was trying in my befuddled mind to figure out how I was going to get from here to there, whereever those places were - hopefully not too far. Now, not only is the wheelchair gone from the horizon, but the everyday walker and, before that, the cane are gone. We, with you, can do this! You have the groundwork laid for a really good start. How is your Vit D level? You have a large cheering section. I am so, so happy for you!

Rica

Posted: Sun Sep 27, 2009 10:00 am
by SarahLonglands
Robbie, when I first started this I just so didn't believe that it would work that David had to really make sure that I took all the doses.

Do try to do a little every day and you will gradually build up your strength. I have been there too and I do remember standing at one end of a room, wondering how I was going to get across: not wanting to use a walker I would slowly drag myself around the room, grabbing hold of anything immobile.

I am so happy that so many people have come to support you!

Sarah

Posted: Sun Sep 27, 2009 2:08 pm
by viper498
Robbie,

I share the same feelings everyone else has, I had no audio on my computer and still got choked up watching that. It seems like triumph to me. I am very happy for you. I hope you only continue to improve. I am glad that ABX appear to be working for you after all even if it wasn't minocycline that did the trick.

Best Regards,
Brock

Posted: Sun Sep 27, 2009 2:26 pm
by Lyon
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Posted: Sun Sep 27, 2009 8:55 pm
by bibliotekaren
Robbie,

Today was my first visit to TIMS in a while as I've been sidetracked taking care of another health issue. The video took my breath away -- I'm so glad to see this! Wish you the best for continued improvement and reclaiming some of Robbie!

Donna

Posted: Mon Sep 28, 2009 4:11 am
by CureOrBust
You have hidden this, yeah, I know, in the correct forum, but congrats!