This Is MS Multiple Sclerosis Knowledge & Support Community

im edss 8 & climbing

this sucks

nothing works 4me

im all fun-ned out

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thx
that yhelped
u get it
still sux tho

..

..

Hey dkep11....hear ya. Reassessing lost function, new limitations every few months leaves a person pretty empty at times. It's a constant battle for me to stay positive. Years ago I decided I'd die early since life was so miserable but I'm still here.

I keep looking for that one thing to help make it suck less. It seems to me that those with a solid support system fare the best.....close friends/family. The more isolated the worse, and MS has a way of chasing some away.

Ah, and there's always anti-depressants. Limited in their power but can made a difference.

MSWorld might offer more in the way of support....there's always more people to respond but it's not as 'user friendly' (no PM , no editing of posts ) just a suggestion.

My new moto.... "Each day as it's given"

i hope that it helps your spirits to know that there are many out here who understand. my inabilities also are ever-increasing, and everything seems awfully difficult and time consuming. this sure isn't the life i worked so hard to build for myself. i cannot do anything, much less the things i love. have to content myself with birdsong.

The ironic thing is. the nonMS parts of my life are good... I'n married, gr8 wife, gr8 kids - I need to focus on that more.

I always say I give myself 1 day a month to throw a pity party, so now I have it out of the way for March!

Still sux tho. Every step down is its own tragedy.

A once monthly pity party sounds like a good idea! Vent and adapt!

hey there d, sorry you've been feeling down. are u in colorado?

y, Colorado, 1hr N of Denver/

i <3 colorado. my best friend lives in centennial. i was down there doing some training in ft collins a few years back. beautiful mountains

Are u still here dkep11 you said you were an 8 and climbing on the EDSS, not a good number to be at. Say hey sometime

I was thinking of his title "get better or die" , when i was told finally, the part i remember most is the neurologist saying the words it's multiple sclerosis it's progressive, chronic and no cure. So that title is tough, I know you can have better ms but it's still there, drugs now make it better but it's still there. So the only part of that title that's possible is the ladder which is our decision not one off ms which I take great comfort in . Someone said give me a disease that at least I can beat or it kills me, ms kills you but lets you live to see it happen.