Loobie's 3rd update
Posted: Sun Feb 11, 2007 1:35 pm
Ok,
I'm ready to update again. I have really waited this time since I was pinging off of on so many false alarms. I have used the 4 day rule suggested by Tim (it's good advice when self monitoring) and have lots to talk about.
The amount of changes are huge to me. I'm either seeing some results or I have the biggest placebo effect ever encountered. As some of you know from my previous posts my big symptoms are as follows:
optic neuritis with bad Uthoff's symptom. Any effort exerted causes severe fogginess as well as heat.
bladder issues in that my bladder is always full since I void so little per potty break and am peeing all the time including at night.
Bowel issues with chronic constipation
Tingling and numbness especially from the waste down
Bad balance
Here is what I have realized over the last few weeks:
My eyes are by far my worst and scariest symptom. They normally "go out" five to ten times each day and up to the time of the trial were staying out most of the day. Yesterday I had NO bad eye time. This is hugely significant since I had to work on my feet all day in front of a friction bonding press which has a platen temperature of 450 degrees F. They went out a little, but normally when I'm around this press I can only make out things that I already know. I can't pick up faces very well and have to really focus on anything new in the environment I'm in to make it out. Then today they didn't go out in the shower. That has NEVER happened. Another also happened today. I love music and listen alot in my car; especially when alone I listen to it loud. I was listening to "Photograph" and singing along loudly (this always causes my eyes to go out) and I realized when I got home that my eyesight was fine. I actually started weeping.
The next big change is my balance. My balance is ok except when I try to navigate through a crowded area or a cluttered area. Then I have to constantly hang onto stuff so I don't fall over or stumble. The worst scenario is going up and down and into bleachers. My daughter is very active in sports and I have to sit in bleachers alot. I don't go up in them anymore since I have to put my hands on everyone I go by so I just sit at the bottom or stand somewhere. Yesterday she had basketball and I went up in the stands and went down a crowded row and didn't have the urge to grab anyone and felt very stable.
I haven't been constipated in a couple of weeks with no change in diet and I made it through church today with out going pee once. This also never happens since it is the morning time and I always have a cup of coffee in me.
I know that Tovaxin isn't an "MS reverser" but I think the intent is to stop the progression and allow your body to do some healing and reversing.
This could all just be a string of "good days" but I hope not. There have been some things that have happened that have never happened even on my best good days up to this point. My headaches have also taken a break.
God I hope this is real. I feel like a manic depressive on the manic side of things I'm so charged up. I know it's not good to get so up about it since it becomes a harder fall if it proves to be only fleeting, but I just can't help it right now. The company I work for is not doing well and my wife is still in school and these things have really had me stressed out but these good things are still happening. They aren't supposed to happen when you are stressed, right?
I just feel very "solid" lately and it feels great. I have more to tell but am choosing to let more time pass before I post any more on those changes. All of my MS symptoms are not gone, but there has been significant change, and none of it for the worse so I'm feeling pretty damn good.
Take care all,
Lew
I'm ready to update again. I have really waited this time since I was pinging off of on so many false alarms. I have used the 4 day rule suggested by Tim (it's good advice when self monitoring) and have lots to talk about.
The amount of changes are huge to me. I'm either seeing some results or I have the biggest placebo effect ever encountered. As some of you know from my previous posts my big symptoms are as follows:
optic neuritis with bad Uthoff's symptom. Any effort exerted causes severe fogginess as well as heat.
bladder issues in that my bladder is always full since I void so little per potty break and am peeing all the time including at night.
Bowel issues with chronic constipation
Tingling and numbness especially from the waste down
Bad balance
Here is what I have realized over the last few weeks:
My eyes are by far my worst and scariest symptom. They normally "go out" five to ten times each day and up to the time of the trial were staying out most of the day. Yesterday I had NO bad eye time. This is hugely significant since I had to work on my feet all day in front of a friction bonding press which has a platen temperature of 450 degrees F. They went out a little, but normally when I'm around this press I can only make out things that I already know. I can't pick up faces very well and have to really focus on anything new in the environment I'm in to make it out. Then today they didn't go out in the shower. That has NEVER happened. Another also happened today. I love music and listen alot in my car; especially when alone I listen to it loud. I was listening to "Photograph" and singing along loudly (this always causes my eyes to go out) and I realized when I got home that my eyesight was fine. I actually started weeping.
The next big change is my balance. My balance is ok except when I try to navigate through a crowded area or a cluttered area. Then I have to constantly hang onto stuff so I don't fall over or stumble. The worst scenario is going up and down and into bleachers. My daughter is very active in sports and I have to sit in bleachers alot. I don't go up in them anymore since I have to put my hands on everyone I go by so I just sit at the bottom or stand somewhere. Yesterday she had basketball and I went up in the stands and went down a crowded row and didn't have the urge to grab anyone and felt very stable.
I haven't been constipated in a couple of weeks with no change in diet and I made it through church today with out going pee once. This also never happens since it is the morning time and I always have a cup of coffee in me.
I know that Tovaxin isn't an "MS reverser" but I think the intent is to stop the progression and allow your body to do some healing and reversing.
This could all just be a string of "good days" but I hope not. There have been some things that have happened that have never happened even on my best good days up to this point. My headaches have also taken a break.
God I hope this is real. I feel like a manic depressive on the manic side of things I'm so charged up. I know it's not good to get so up about it since it becomes a harder fall if it proves to be only fleeting, but I just can't help it right now. The company I work for is not doing well and my wife is still in school and these things have really had me stressed out but these good things are still happening. They aren't supposed to happen when you are stressed, right?
I just feel very "solid" lately and it feels great. I have more to tell but am choosing to let more time pass before I post any more on those changes. All of my MS symptoms are not gone, but there has been significant change, and none of it for the worse so I'm feeling pretty damn good.
Take care all,
Lew