Posted: Sat Dec 15, 2007 9:06 am
They haven't said anything about my MRTC's at all. However, since I just had a relapse and they don't want to dose when you are in a relapse, therein lies the apparent problem. I KNOW I'm not in a relapse now, and their has never been mention of no MRTC's in my blood. I don't think that's the point. I think they are being cautious because of the no dose during relapse thing, but like I said, if they don't get this shit started, I'll be in another one sure as hell. My last post was probably a bit disjointed since it is hard for me to maintain a cohesive flow to my thoughts once my trigger has been tripped. I woke up extra pissed since I know I can't bug anyone today! I have to wait until Monday to start up the whole "nag until you get some real feedback" process.
I may just be 'shouting at the ocean', but at least it feels like I'm doing something. I don't know Bob, I've just had a progressively worse time of things physically and I'm just really reacting to all this emotionally instead of intellectually and that just puts me out of where I usually reside.
So to answer your specific queries; they are NOT wanting to dose during a relapse. You got the opposite impression from my rant it looks like. And no, they haven't told me that my MRTC count is low. They've told me nothing and that's why I'm so frustrated. If they tell me my MRTC count is low and they can't make it, I'm pulling out and trying something else. I can't just sit on my hands and continue to 'fly naked'. It may turn out to be the worst decision I could ever make, but after having three exacerbations this year, I'm not about to risk another year without having at least something in my system that somebody says may work. And to top it off, I just read an article (I was going fast, so I don't remember where it is) that talks about a trend in MS. They talk about people that have sphincter muscle issues tend to have a more virulent course. Guess what I have? It could have been just someone's theory, but it got published and in the emotional state I'm in, I can't get that thought out of my mind. I'm just in a really bad spot right now and if my research coordinator were in front of me right now, I'd choke his skinny ass even though all of this is probably none of his fault. He's just the face of this trial for me and right now this trial can kiss my white ass.
I may just be 'shouting at the ocean', but at least it feels like I'm doing something. I don't know Bob, I've just had a progressively worse time of things physically and I'm just really reacting to all this emotionally instead of intellectually and that just puts me out of where I usually reside.
So to answer your specific queries; they are NOT wanting to dose during a relapse. You got the opposite impression from my rant it looks like. And no, they haven't told me that my MRTC count is low. They've told me nothing and that's why I'm so frustrated. If they tell me my MRTC count is low and they can't make it, I'm pulling out and trying something else. I can't just sit on my hands and continue to 'fly naked'. It may turn out to be the worst decision I could ever make, but after having three exacerbations this year, I'm not about to risk another year without having at least something in my system that somebody says may work. And to top it off, I just read an article (I was going fast, so I don't remember where it is) that talks about a trend in MS. They talk about people that have sphincter muscle issues tend to have a more virulent course. Guess what I have? It could have been just someone's theory, but it got published and in the emotional state I'm in, I can't get that thought out of my mind. I'm just in a really bad spot right now and if my research coordinator were in front of me right now, I'd choke his skinny ass even though all of this is probably none of his fault. He's just the face of this trial for me and right now this trial can kiss my white ass.