Page 3 of 3
Posted: Sat Nov 03, 2007 7:11 am
by Lyon
HYCY wrote:I was able to work with Dr. Kerr and Dr. Brodsky at John Hopkins. I can not say enough about the facililty and staff at that hospital.
Hi Chris,
Have you considered contacting the people who Brett dealt with, since Dr Gladstone's situation is "in the air" for the time being?
Bob
Posted: Sat Nov 03, 2007 3:19 pm
by chrishasms
Well no I hadn't thought of it but at the same time I didn't want to be a pest either.
Also, I have some family in the NY area, so as far as accommodation's it's easier.
What do you think HyCy?
Posted: Sat Nov 03, 2007 5:41 pm
by HiCy
Chris,
I am not sure if the door has been shut to this protocol because it has entered into an approved FDA trial. Since the FDA is now looking at this as an actual therapy it might be in a black out period were they can't enroll any new patients. THis doesn't make much sense to me but what does with the FDA. I have sent out a few emails and I will let you know what comes back. In regards to any treatment don't say you "don't want to be a pest" as an excuse to not being persistent. "Squeaky wheel gets the grease."
HiCy
Posted: Sun Nov 04, 2007 7:23 am
by chrishasms
HMMMMMM didn't think of that. I don't understand the FDA at all either. I don't think they understand themselves either.
I do know I hate being a pest, but if people know that it allows me the ability to be one.
If that makes sense your MS isn't that bad lol!
Posted: Tue Nov 06, 2007 7:35 am
by HiCy
Chris,
Check your messages.
HiCy
Posted: Sat Mar 08, 2008 10:43 pm
by Jamie
Hey HiCy,
Nearly another 4 months on - how are you doing?
Thanks,
Jamie.