Page 5 of 9
Posted: Fri Dec 28, 2007 11:50 am
by Lyon
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Posted: Fri Dec 28, 2007 3:08 pm
by Loobie
Congratulations Chris!,
I won't spooge on the board like Bob, but that's some good freakin' news!
Posted: Fri Dec 28, 2007 3:20 pm
by chrishasms
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Posted: Fri Dec 28, 2007 5:04 pm
by Lyon
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Posted: Fri Dec 28, 2007 5:11 pm
by chrishasms
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Posted: Fri Dec 28, 2007 5:22 pm
by Lyon
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Posted: Mon Dec 31, 2007 8:53 am
by HiCy
Chris,
Good luck on the 9th! I am glad this is working out for you and JH has scheduled you for the initial appointment. If they give you the green light you will be starting before you know it. I started 30 days after my initial visit. Dr. Kerr and staff are a great group of doctors and they will be very helpful. Dr. Brodsky is the oncologist with the license on the process. Have they scheduled you to meet with him? If not it is not a big deal. I met with him for the first time the day before I started the treatment.
HiCy
Posted: Mon Dec 31, 2007 9:13 am
by Lyon
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Posted: Mon Dec 31, 2007 9:13 am
by chrishasms
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Posted: Mon Dec 31, 2007 11:01 am
by Lyon
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Posted: Wed Jan 02, 2008 8:50 am
by HiCy
Chris/Bob,
I am feeling ok. No real change in symptoms. Being anemic is a drag as it is taking a while for my red cell count to come back to normal. It is a waite and see game at this point.
In regards to the campath question and RR vs. SP or PP most of the patients who have gone through this were in a PP or SP state, me included. I would definitley say I was moving out of RR and that is why I tried this protocol. Some of the initial worst patients whom were most likely PP have not shown any further progression but very little recovery. The issues is really what damage is permanent, what is inflamation and what areas can experience a re-mylanation. Since you are starting with a new immune systom is really does not matter what state of the disease you are in. I am willing to bet that if this process hits the main stream that insurance will only be paying for people who have tried everything else and are not having any success. That was the boat I was in. I had been on everything including tysabri and was still having problems.
HiCy
Posted: Thu Jan 03, 2008 6:44 am
by chrishasms
123
Posted: Thu Jan 03, 2008 7:06 am
by Sharon
Good Luck Chris - from one Denverite to another. It was good to hear that the vision problems are starting to subside a bit. I think that if you are able to get rid of the inflammation with this process, your body has a chance to repair itself. You may have axon damage which can't be repaired, but your body has the ability to repath neurons around the damage. This is not remyelination, just a new path using a healthier and un-inflamed nervous system.
I have my WalkAide - will post under the new forum section about my experiences.
Take care
Sharon
Posted: Thu Jan 03, 2008 7:26 am
by chrishasms
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Posted: Sat Jan 05, 2008 10:28 am
by Lyon
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