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Posted: Tue Apr 22, 2008 12:32 pm
by chrishasms
Relax it took me easily 2 weeks of waiting and now they have more folk. They will leave a message!
Bob I believe thats nationwide where as 100 MS'ers were JH I believe.
Posted: Tue Apr 22, 2008 12:36 pm
by 777
I wonder why we dont see the others post on forums. I wish they would so we could know how the others are doing.
Posted: Tue Apr 22, 2008 12:42 pm
by chrishasms
Most of those folks are not internet based. Most of them were already being seen by Dr. Kerr, JH, or someone who's doctor knew Dr Kerr and the Hicy treatment.
If I didn't have the internet no one would know about me either. Now that more Hicy'ers are coming there who have internet we are going to start hosting their blogs as well.
I believe we have 2 starting in the next couple of weeks and the links will be on my page.
Posted: Tue Apr 22, 2008 12:54 pm
by Lyon
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Posted: Tue Apr 22, 2008 1:47 pm
by chrishasms
Well they did this is Chicago originally I believe in the mid 90's. In fact I'm under the impression Rush hospital in Chicago may be doing it again really soon.
It may be 250 now but when I was just there a fellow HiCy'er told me he was told by the docs the number of over 100. It is secondary info and for that I'm sorry.
I can tell you he was from Virginia and one week before he had the treatment he wasn't able to walk at all. This guy was walking for 2 hours a morning around his room with a cane one week later.
To me it is nominal really. 100-250 is just fine. It can be 500. Show me any of the crab drugs returning people to their feet in clinical trials, or even after they were approved!!
Speaking of which...I need to WALK the 75 yards to my mailbox to check it! It's nice to do that again!
Posted: Tue Apr 22, 2008 1:55 pm
by Jamie
CHris,
We saw Dr Brodsky today, what a top bloke.
I didn't get a reply from Chennell, are we able to send you posts for you to host on your site?
Thanks
Jamie.
Posted: Tue Apr 22, 2008 2:01 pm
by Lyon
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Posted: Tue Apr 22, 2008 2:14 pm
by chrishasms
It's funny you mention that Bob. I know a guy with 17 active lesions and he refuses to think he is doing that bad because he still feels OK except for a touch of vision issue's. ( A touch isn't enough!!)
He refuses to take anything! lol
I told him he's an idiot because he will wake up one day unable to move but he will at least know why!
17 active lesions. I'm sorry but that is moronic.
Posted: Tue Apr 22, 2008 2:30 pm
by chrishasms
Email my wife Jamie and tell her. I just show up and act out the script
Ya Dr. B doesn't suck does he? I was awestruck for a second when I met him but wow is he a normal guy. Trust me that he knows what he is doing. I was still a little scared up until I talked to him. I'm sure you are not nearly as worried as you were either.
So what then..tomorrow the hickman and the drip?
Posted: Tue Apr 22, 2008 2:31 pm
by 777
How do you know all 17 of his lesions are active?
Posted: Tue Apr 22, 2008 2:33 pm
by chrishasms
His doctor told him so!!! Can you believe that shit!!!
Posted: Tue Apr 22, 2008 2:52 pm
by 777
Thats nuts, he really needs to be taking something. Is he just recently dx? If thats the case then obviously he is naive and doesn't understand this disease.
Posted: Tue Apr 22, 2008 4:11 pm
by Lyon
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Posted: Tue Apr 22, 2008 4:26 pm
by chrishasms
No I told him it was moronic he wasn't taking anything at least preemptively. especially with that much activity.
No JH is someones decision. Not stupid at all.
I just think it's silly that if someone has a broke arm in 17 places they would at least were a cast. Why wouldn't you take a shot or call JH rather than nothing.
It's the same as if you have the beginning stages of skin cancer but if we remove this little mole you'll live a long healthy life and you say no.
Posted: Tue Apr 22, 2008 4:28 pm
by 777
He should at least be on steroids to help with the inflamation. I don't think he is crazy for not wanting to under go chemo at JH though.