canadians
Posted: Sun May 04, 2008 3:12 pm
first of all i should say sorry for not writting sooner
it's been an off and on nightmare since coming back
my major MS issue is pain, not rare but not too common either
my neck, hands, arms, shoulders and ribs are agony i haven't been able to walk because of pain, i've had very little to no relief in 3 years
so my first visit was to the ms clinic in kingston
saw the no. one guy a dr b
first i saw his intern, nice kid, but he has a long way to go if he is gonna continue in the ms field, i told that my hearing has all come back a couple weeks ago and he said ms doesn't cause hearing issues
anyway, he left me in my chair and tested my reflexes, eyes and a couple other things i was exhausted then dr b came in said that i was ppms with edss score of 6.5, the only suggestion he had for me was to smoke mj 3 times a day he said he wished mn-166 was on the market, he thinks that would help me he is not too sure about the revimmune, something about bone marrow issues but took all the info and was very interested he said he would help out with all the paperwork and stuff but i would not qualify because i can't walk 25 steps
so after that uplifting appointment, i didn't want to go to Ottawa the next day
but.......... i did
so not a good start we got lost, i love my husband more than anything but he is missing that chip in his brain that will ask for directions
so we were too late to see dr freedman but a woman neor had time to see me in his clinic
wow, i really liked having a woman for a change she understood female issues
she said i had spms and showed me the up and downs issues over the last 6 yrs
i had numerous measurable lesions in my brain, now they have shrunk to less them tiny pin dots
i have two old lesion in my spine that have shrunk in size and a new active lesion in my spine below the other two
she asked my husband to lift me onto the table
no more weak eye, all my refexes worked and my muscles worked when i told them to, not very much but they are there
when i'm in my chair with my shoes on, i can't breathe very well and my shoes are freking heavyshe 'thinks' if we can some relief from the pain, i should be able to get back on my legs
she is totally against revimmune, she said the risk is too high for me to get breast cancer, brain cancer and blood cancer
her opinion really surprised me considering who he boss is
the big hope is i get enough relief from the botox on may 14th to get back on my feet
so then i got yet another UTI
and had a major reaction to something
so i had peloerection-goose bumps, but not nice goose bumps, very painful my body became hot to touch and agony to feel, my heartrate was extremely high and my blood pressure was high, and the hair on my forearms stood straight up and were painful
it was freaky
but i was reading about spinal injuries or spinal lesions and it could cause AD and these are the freaky things that happen
so i've had more pain, i couldn't believe i could deal with more
so i'm having botox on may 14th
MRI as soon as possible with the dye, of my head and neck and a bigger look at my spine
although Canadian neuros are not interested in revimmune, i still am
so i gotta work on my 25 steps
sorry about the length
shell
it's been an off and on nightmare since coming back
my major MS issue is pain, not rare but not too common either
my neck, hands, arms, shoulders and ribs are agony i haven't been able to walk because of pain, i've had very little to no relief in 3 years
so my first visit was to the ms clinic in kingston
saw the no. one guy a dr b
first i saw his intern, nice kid, but he has a long way to go if he is gonna continue in the ms field, i told that my hearing has all come back a couple weeks ago and he said ms doesn't cause hearing issues
anyway, he left me in my chair and tested my reflexes, eyes and a couple other things i was exhausted then dr b came in said that i was ppms with edss score of 6.5, the only suggestion he had for me was to smoke mj 3 times a day he said he wished mn-166 was on the market, he thinks that would help me he is not too sure about the revimmune, something about bone marrow issues but took all the info and was very interested he said he would help out with all the paperwork and stuff but i would not qualify because i can't walk 25 steps
so after that uplifting appointment, i didn't want to go to Ottawa the next day
but.......... i did
so not a good start we got lost, i love my husband more than anything but he is missing that chip in his brain that will ask for directions
so we were too late to see dr freedman but a woman neor had time to see me in his clinic
wow, i really liked having a woman for a change she understood female issues
she said i had spms and showed me the up and downs issues over the last 6 yrs
i had numerous measurable lesions in my brain, now they have shrunk to less them tiny pin dots
i have two old lesion in my spine that have shrunk in size and a new active lesion in my spine below the other two
she asked my husband to lift me onto the table
no more weak eye, all my refexes worked and my muscles worked when i told them to, not very much but they are there
when i'm in my chair with my shoes on, i can't breathe very well and my shoes are freking heavyshe 'thinks' if we can some relief from the pain, i should be able to get back on my legs
she is totally against revimmune, she said the risk is too high for me to get breast cancer, brain cancer and blood cancer
her opinion really surprised me considering who he boss is
the big hope is i get enough relief from the botox on may 14th to get back on my feet
so then i got yet another UTI
and had a major reaction to something
so i had peloerection-goose bumps, but not nice goose bumps, very painful my body became hot to touch and agony to feel, my heartrate was extremely high and my blood pressure was high, and the hair on my forearms stood straight up and were painful
it was freaky
but i was reading about spinal injuries or spinal lesions and it could cause AD and these are the freaky things that happen
so i've had more pain, i couldn't believe i could deal with more
so i'm having botox on may 14th
MRI as soon as possible with the dye, of my head and neck and a bigger look at my spine
although Canadian neuros are not interested in revimmune, i still am
so i gotta work on my 25 steps
sorry about the length
shell