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Revimmune results
Posted: Tue Jun 17, 2008 10:51 am
by bromley
Posted: Tue Jun 17, 2008 1:53 pm
by Lyon
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Posted: Wed Jun 18, 2008 4:06 am
by bromley
Bob,
You're more bonkers than I thought. I can't see what you are on about.
I think you should start smoking again and getting back into your old ways of spending your evenings in sleazy lap-dancing clubs.
Ian
Posted: Wed Jun 18, 2008 5:24 am
by Lyon
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SPMS
Posted: Wed Jun 18, 2008 11:09 am
by ladystewart
OK-- I just got off the phone with Dr. Hammond and I was told that Revimmune is not very effective in people with SPMS. I am soooo finished now. I was diagnosed with RRMS and he said they are using RRMS patients. So if I had the treatment when diagnosed RRMS (2002) it would have been better?????????
I have to wait until I am peeing/shi---- on myself??? So I have a husband and 2 chidren and they suffer because I can do nothing now for them!! sorry---venting--UGH
GOD help. My mother had MS and I am worse. Been desling since I was 12 years old. Stemcell transplant??
Posted: Wed Jun 18, 2008 12:25 pm
by robbie
I was told that Revimmune is not very effective in people with SPMS. I am soooo finished now. I was diagnosed with RRMS and he said they are using RRMS patients. So if I had the treatment when diagnosed RRMS (2002) it would have been better?????????
what a f$$king joke!
.
Posted: Wed Jun 18, 2008 2:43 pm
by Lyon
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Posted: Wed Jun 18, 2008 3:39 pm
by ladystewart
I think some who have had treatment, and doing well, were PPMS. I thought PPMS was worse than SPMS---I am thinking about email to send to JH...........
Shar----
Posted: Wed Jun 18, 2008 4:15 pm
by Lyon
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Posted: Wed Jun 18, 2008 5:18 pm
by robbie
so there is 9 people with ms treated with Revimmune and they are saying that it won't be as affective with spms, how do they know that?
Posted: Wed Jun 18, 2008 5:33 pm
by Jamie
There are a lot more than 9.
Just that study had 9.
There's a couple of hundred. Still not huge numbers admittedly.
Posted: Wed Jun 18, 2008 5:41 pm
by robbie
jamie how many total in this trial were spms?
Posted: Wed Jun 18, 2008 6:18 pm
by Lyon
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Posted: Thu Jun 19, 2008 6:00 am
by robbie
so there is 9 people with ms treated with Revimmune and they are saying that it won't be as affective with spms, how do they know that?
just say the trial at JH
Posted: Thu Jun 19, 2008 7:39 am
by ladystewart
9 people at JH. 1 gets better--what if I am the 1. To me EVERYONE deals with medication differently. If Revimmune takes away my immune system then all will be gone. I was told to take the pulse of Cy---difference?? I agree that 'progressive' is 'progressive.