3 month post hicy (round 2) update
Posted: Mon Aug 03, 2009 11:16 pm
Hi again everyone,
Well, it is with sadness that I report that things have been on a downslide for the last two weeks. My previous update, I was on top of the world and living without much limitations or restrictions. In the last week or so, I have become symptomatic to a somewhat severe degree.
Tomorrow I will go for my 3 month MRI follow-up and maybe we'll know more - maybe there will be active lesions, I don't know. I don't know that it matters what the MRI says, as the bottom line is - i am symptomatic again. This is very disappointing and frightening. I cant bear the thought that I might be slipping again.
I'm waiting to hear from Dr. Kerr at JH to discuss options for me - as sitting still and doing nothing is not an option for me. i will not sit still and just wait....my ms has been fairly aggressive from onset - and that's just too risky for me.
Im trying to learn more about the CCVSI stuff....I'm still confused on it - but that isnt going to stop me from getting in touch with the docs over at stanford. besides, ive met my medical costs for the year, so i have NO copayments anymore for any testing etc, so it wouldnt cost me anything except to get up to Northern Cali - and being that I'm in Southern Cali, that isnt much more than a 45 minute flight! So......if I can figure out what to do and who to contact - I will get the ball rolling.
movement. i need to keep moving. i will not go backwards. i will not get worse. i will fight.
thanks for listening to my somewhat pity party
~Keri
Well, it is with sadness that I report that things have been on a downslide for the last two weeks. My previous update, I was on top of the world and living without much limitations or restrictions. In the last week or so, I have become symptomatic to a somewhat severe degree.
Tomorrow I will go for my 3 month MRI follow-up and maybe we'll know more - maybe there will be active lesions, I don't know. I don't know that it matters what the MRI says, as the bottom line is - i am symptomatic again. This is very disappointing and frightening. I cant bear the thought that I might be slipping again.
I'm waiting to hear from Dr. Kerr at JH to discuss options for me - as sitting still and doing nothing is not an option for me. i will not sit still and just wait....my ms has been fairly aggressive from onset - and that's just too risky for me.
Im trying to learn more about the CCVSI stuff....I'm still confused on it - but that isnt going to stop me from getting in touch with the docs over at stanford. besides, ive met my medical costs for the year, so i have NO copayments anymore for any testing etc, so it wouldnt cost me anything except to get up to Northern Cali - and being that I'm in Southern Cali, that isnt much more than a 45 minute flight! So......if I can figure out what to do and who to contact - I will get the ball rolling.
movement. i need to keep moving. i will not go backwards. i will not get worse. i will fight.
thanks for listening to my somewhat pity party
~Keri