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first infusion

Posted: Thu Oct 22, 2009 6:49 pm
by ElMarino
I had my first infusion yesterday at the Royal London hospital. I experienced no side effects whatsoever. It took nearly five hours to complete the infusion (600ml commencing with 30ml/hour, increasing by an extra 30 ml/hour every thirty minutes, the titration was slowed for a while due to lowish blood pressure)...

Would like to hear more about your experience

Posted: Mon Nov 02, 2009 8:16 am
by Longing4Cheese
Thank you for telling us about your experience with Rituxan. I hope you will keep reporting on your condition here, whether you have any or no side effects, improvement (or not) in your symptoms, etc.

Keep moving,
Longing4Cheese (Jack Sprat)

Re: Would like to hear more about your experience

Posted: Mon Nov 09, 2009 1:57 am
by ElMarino
No side effects to report. The literature talks about a 20% who suffer not-so-serious side effects buit my infusion nurse said that these figures were based on clinical experience with cancer patients and that she would expect the rate to be far lower with MS patients.

Posted: Tue Nov 24, 2009 12:10 pm
by patientx
Sorry to go off topic, but Jack I noticed in your signature line you were re-diagnosed RRMS. Why the change?

Posted: Thu Nov 26, 2009 6:39 pm
by ElMarino
It's been about three weeks since my second of the two infusions.

Perhaps I've had a tiny, tiny improvement..
In any event, I wasn't anticipating any improvement, I'm just hoping on svoiding my seasonal Spring relapse.

So, I just t5hought that I'd post to say 'nothing to report'..

By the way, I'm very squeemish and I can't stand the experience of being in a hospital but I did not find treatment at all unpleasant.

username

Posted: Fri Jul 15, 2011 7:25 pm
by msmything
ElMarino,...Kind of gives you a latino romantic feel..

Don't know what you were going for though...

Re: first infusion

Posted: Mon Feb 20, 2012 9:44 am
by LR1234
Hey ElMarino,
Wondering how you are getting on.....did this drug help at all?