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I've stopped copaxone, does anyone need it?
Posted: Tue Aug 03, 2010 4:20 pm
by msmything
My doc told me to stop taking copaxone, I have 2 months worth in the fridge, does anyone need it?
Please be aware that if you seem like you have stopped getting it from your insurance provider, the can say that you are not following doctors directions, and can give you a hard time getting back on...
please PM me
thanks
Colleen
Posted: Mon Sep 20, 2010 7:32 am
by Talltree11
Colleen, Can I ask why you have stopped. I too am looking to stop and have lots of excess stock. K
Posted: Mon Sep 20, 2010 6:00 pm
by msmything
Hiya Talltree, welcome to the site, you'll find alot of experience here...
Anyway, I decided to stop because I was continuing to have realpses with the development of new lesions, 3 at a time or so, a couple of times a year.
It just didn't make sense. I had the whole lipolysis thing going on, I figured my body really doesn't get along with this stuff, and it's not doing a good enough job as far as I can tell.
There's always the question of how many relapses would I have had had I NOT been using it? That will remain unanswered.
I feel crummy all of the time, I was hoping that would change when I removed a poison, no such luck.
I'm still waiting to hear from the Cleveland Clinic, they have a mesenchmal stem cell study, it's quite difficult to find the correct person to speak to.
Let me know what you decide..have you done the interferon route?
Whick Kent are you from TT11?, UK or USA?