Off meds.. Your thoughts please...
Posted: Mon Nov 10, 2008 8:24 pm
I was doing so so on Copaxone...so I thought but then it started again...shots being too awful..side affects..I could not move, stiff and in pain...could not do anything but barely do my job and sleep...I lost my quality of life..could not go anywhere..not even church...getting up to go to work was a HUGE ordeal for me let alone anything else...and I stayed in pain. I called my pharmacy and said no more meds please. Stop the shipment. I've been off them two months now...and while I know I still have MS..forever...Even my worst day is 100 times better than everyday I was on that stuff....so for now Im going to just go at this alone. No meds..for my worst days which I may have one MAYBE once a week....and I'm just talking some pain...I take a little pain medication and I do fine...but now Im doing so much better with work, doing so much better getting out, going to church, being with friends...I feel like I have my life back.
I know the MS is still there. I have little reminders of it but I just cannot even think about going back on any sort of shots and that other medicine for muscle pain and all is for the birds. I flushed it all down the toilet.
Anyone feel this way and do exactly what I did...
I do NOT advise anyone to do this at all. You stay on your treatment plan or what you are doing that works for you. I made this decision freely and on my own...
To be honest. My Neuro docs do not know..I don't see them until Jan when I have a new MRI done and all. I pray that its a good visit..
The Copaxone was making me worse as did the other shots ( Betaseron)....Now I walk 2 hours a day..YES 2 hours a day..one in the morning, one at night..and I work out....more than ever...and I feel good..
I've lost weight and am getting in tip top shape which is important for MS people for later on should I become where I cannot walk or something which I pray never happens..
Its just my personal feelings that I don't really believe any of those meds do anything...maybe they do but for me they robbed my life more than the MS did. I may have to go back to them one day..I hope not but for now...I'm living my life best I can..and enjoying it.
Thanks for listening
Hope everyone is well.
I know the MS is still there. I have little reminders of it but I just cannot even think about going back on any sort of shots and that other medicine for muscle pain and all is for the birds. I flushed it all down the toilet.
Anyone feel this way and do exactly what I did...
I do NOT advise anyone to do this at all. You stay on your treatment plan or what you are doing that works for you. I made this decision freely and on my own...
To be honest. My Neuro docs do not know..I don't see them until Jan when I have a new MRI done and all. I pray that its a good visit..
The Copaxone was making me worse as did the other shots ( Betaseron)....Now I walk 2 hours a day..YES 2 hours a day..one in the morning, one at night..and I work out....more than ever...and I feel good..
I've lost weight and am getting in tip top shape which is important for MS people for later on should I become where I cannot walk or something which I pray never happens..
Its just my personal feelings that I don't really believe any of those meds do anything...maybe they do but for me they robbed my life more than the MS did. I may have to go back to them one day..I hope not but for now...I'm living my life best I can..and enjoying it.
Thanks for listening
Hope everyone is well.