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PostPosted: Sat Feb 06, 2010 3:20 am
by annbbe
hey, sunlounger, how are you? when are you going to have your next op?

PostPosted: Sat Feb 06, 2010 3:26 am
by Sharon
wonky1 wrote
Soon you'll be impatient to wake up so you can see the changes a new day brings.


Prior to my procedure at Stanford, in the morning when I would get up I had a fear that something might have changed overnight. ... Now when I get up I am confident that the day is going to be just as good as the previous day and there is a chance it is going to be better.

The healing and repair process takes time, but I am sure it will happen for you.

Sharon

PostPosted: Sat Feb 06, 2010 6:34 am
by Billmeik
You know I don't know if liberation will be shown to always create improvements. But if you know you're not going to get worse, then all you have is old damage to fix. Are any of your symptoms connected to old injuries or old hyoer-use? Like I play the saxophone professionally and last attack my hands went numb. My legs and toes didnt because i was jogging every day. To get my fingers back I'm starting to practice my horn again. Remember what you probably get is reorganization not remission. So your body figures out how to do old tasks in new places in the nervous system. Even though a neural pattern seems 'gone' it is held like a holograph in all the other patterns, so its mostly still there. Hoping is big. If you dream at night of something coming back, its actually your body practicing..

PostPosted: Sat Feb 06, 2010 7:42 am
by annbbe
Thank you All, thanks Bill. This what you wrote here is so encouraging. I really feel that my body is trying to learn how to do old things in a new way...:)

PostPosted: Sat Feb 06, 2010 9:09 am
by Billmeik
that one stuck in my head like a burr. I think I have numb hands not because I played the sax but because I stopped when I reached 40. tons of nerve endings were trained on my fingers. Mylenation might be the way memory works. Demylenation might be forgetting. In MS an attack might target areas that you're doing some forgetting on anyways. Like bugs in a vegetable garden attack the rotting fruits and plants, maybe MS attacks the 'weak' areas (like injuries or forgetting)

PostPosted: Sat Feb 06, 2010 1:26 pm
by sunlounger
annbbe wrote:hey, sunlounger, how are you? when are you going to have your next op?


hi annbbe,

I am still waiting to hear back from Dr Simka :?
My M.S is the same maybe slightly worse ....
I dont think the ballooning was enough to keep my stenosis open :(
Hopefully I will get a chance to come back to Poland in March for futher op where I think they will use a stent. :D

PostPosted: Sat Feb 06, 2010 1:40 pm
by annbbe
Sunlounger, fingers crossed for you!:)

PostPosted: Sun Feb 07, 2010 5:46 am
by annbbe
Hi, i am sad, because of my fatigue. I feel it once again (I didn't feel that when I was on Tysabri, but i havent taken infusion for almost 2 mnths...).
I wanted to try if i can manage without tysabri, but unfortunately no, i have to take it. Next week i have an appointment with my doc, and 13th tysabri infusion I hope...
Take care.

PostPosted: Sun Feb 07, 2010 8:15 am
by alby
sorry to hear that, hope it will all go well.

PostPosted: Sun Feb 07, 2010 11:03 am
by pgm1
Hi annbbe

I think this is worth a read and maybe try it and talk to your Doctor about it,this might help us all.
I posted this before but no one responded

Let me know what you all think i found it very interesting

Pam :)

PostPosted: Sun Feb 07, 2010 11:16 am
by annad
Is there a link, Pam??

PostPosted: Sun Feb 07, 2010 11:32 am
by pgm1
Hi annad

Yes there is a link,OOPS Sorry about that

http://healingpowernow.com/

Pam :)

PostPosted: Sun Feb 07, 2010 11:44 am
by annad
Thanks!
been there. . . . done that
:)

PostPosted: Sun Feb 07, 2010 11:49 am
by pgm1
Well what did you think ?

Pam :)

PostPosted: Sun Feb 07, 2010 7:03 pm
by nicko
annbbe wrote:Hi, i am sad, because of my fatigue. I feel it once again (I didn't feel that when I was on Tysabri, but i havent taken infusion for almost 2 mnths...).
I wanted to try if i can manage without tysabri, but unfortunately no, i have to take it. Next week i have an appointment with my doc, and 13th tysabri infusion I hope...
Take care.


You had your op 4-5 days ago right? personally I would wait a few weeks before jumping back on tysabri. Your fatigue may come around on its own and you get to be pml free :) Just my opinion, but hey you know your body.