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Posted: Sat Sep 04, 2010 4:06 pm
by Nasti
Ann
I am happy to hear of your recovery.
I am a similar case like yours, 27, got dx in 2000 as well, had my liberation in Bulgaria in June.
I feel my symptoms from time to time, esp when I am tired, but my energy level is better, I am not tired of life anymore.
However, I am still on ldn. I am afraid to give them up. They did wonders with my energy in 2007, got my life back, and i am afraid to let them go. So if Tysabri gets too expensive, maybe you can try LDN, a tremendous help with energy.
Postprocedure, I had a slow recovery as well, but I am ok now, so things are starting to turn up for the better.
Best wishes,
Nasti
Posted: Tue Sep 07, 2010 6:47 am
by annbbe
Hi TIMS's Friends!
My physical state is currently going better and better. Yesterday still I wasn't able to take this heel-toe walking test at all. And just a day later - today I am almost ready to take this walk. Just a day later!
I couldn't believe it, so I sat on my exercice cycle and started to pedal to check my strength. And it is better as well!
I am 7 months after left jugular vein angioplasty, I feel the more and more healthy:))).
Posted: Tue Sep 07, 2010 6:57 am
by annbbe
Nasti wrote:Ann
I am happy to hear of your recovery.
I am a similar case like yours, 27, got dx in 2000 as well, had my liberation in Bulgaria in June.
I feel my symptoms from time to time, esp when I am tired, but my energy level is better, I am not tired of life anymore.
However, I am still on ldn. I am afraid to give them up. They did wonders with my energy in 2007, got my life back, and i am afraid to let them go. So if Tysabri gets too expensive, maybe you can try LDN, a tremendous help with energy.
Postprocedure, I had a slow recovery as well, but I am ok now, so things are starting to turn up for the better.
Best wishes,
Nasti
Nasty, Hi!
You know what? I would like to give up Tysabri, but I am afraid a bit too. I improved so much...I don't want to loose it (but I am not sure if Tysabri is still working for me). In my opinion what is going on at the moment it is liberation effect.
Posted: Sat Apr 02, 2011 4:09 am
by annbbe
Hi, I went to Katowice, Euromedic yesterday. It turned out, that 14 months after procedure, my veins are still open.
Wow!
It is so great to be in those 45% of patiens who don't have restenosis so far;).
Next control in a year!:)
Take care!
Posted: Sat Apr 02, 2011 7:07 am
by Cece
congrats annbbe!!!
annbbee
Posted: Sat Apr 02, 2011 8:43 am
by blossom
great to hear you are doing so well and you have good flow. are you still improving?
Posted: Sat Apr 02, 2011 10:53 am
by Pepe
Hi Annbbe,
¡¡¡Congrats Annbbe!!! María is doing very well too since the CCSVI's intervention on January, 2010. No reestenosis so far. Only improvements. Two weeks ago she told me she was able to write on the computer with her left hand fingers again. That's true: You and María are very lucky...so far.
¡¡¡Take care!!!
¡¡¡Best wishes!!!
Pepe.