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Buffalo Newsletter

Posted: Thu Feb 04, 2010 2:39 pm
by MS_Jess
Hi, I'm a newbie, but thought this warranted a new topic to make sure it isn't buried:

http://www.bnac.net/wp-content/uploads/ ... 4-2010.pdf

Posted: Thu Feb 04, 2010 2:52 pm
by zap
AWESOME.

Posted: Thu Feb 04, 2010 3:15 pm
by PCakes
WOW!
Good job Jess!!

Posted: Thu Feb 04, 2010 3:26 pm
by dunkempt
Although they say, "We cannot recommend endovascular treatment before we fully understand the safety of any approach we may propose," following their CCSVI diagnostics "patients and their neurologists will be able to discuss appropriate next steps"

Which next step would surely mean considering ... endovascular treatment.

Game, set, and match, I think.

Posted: Thu Feb 04, 2010 3:27 pm
by GuRu
:D GREAT :D

Posted: Thu Feb 04, 2010 3:37 pm
by newfie-girl
OMG!!!!!!!! It's going to happen for us, all the hard work of our pioneers paid off and God Bless Dr. Zambone, can't type anynore, tears are filling up my eyes and I can't see the screen............

Posted: Thu Feb 04, 2010 4:00 pm
by Cece
Wow! Very encouraging! So what could they mean about additional questions raised that will be addressed in phase 2 of the CTEVD study? I think I am out of wait for these study results!!! :)

Posted: Thu Feb 04, 2010 4:03 pm
by fogdweller
Though no results announced, the tone of newsletter SCREAMS success A new machine invented and developed for this disorder; further expanded studies, negotiations begun with the insurnace companies to cover this (how can you do that without positive results???) all the things that they were able to say in the nature of an exciting new direction for MS reaserch, the expanded research, the ,"I hope to soon be able to redcommend intravascular treatment" etc,. etc!!!

OMG, this couldn't be more exciting !!!!

Posted: Thu Feb 04, 2010 4:04 pm
by fogdweller
Cheerleader, how excited are you?? many, many thanks for all your efforts.

Posted: Thu Feb 04, 2010 4:11 pm
by ozarkcanoer
MS_Jess !!!! This is the best news ever !!!!!!!!!!!!! I'm so glad you posted this !!!

ozarkcanoer

Posted: Thu Feb 04, 2010 4:28 pm
by Cece
Also wondering what their treatment is that's different from both Zamboni and Dake's!

Posted: Thu Feb 04, 2010 4:40 pm
by AlmostClever
Sounds like a complete success! Can't wait to fire my nerdo -I mean nuero! hahahaha!

Zamboni gets the Nobel easily with this!

Posted: Thu Feb 04, 2010 4:50 pm
by Bobbi
Wow MS_Jess!
Hot off the press ..... thanks for the link.
Bobbi

Posted: Thu Feb 04, 2010 5:23 pm
by TFau
Wow - I can't believe how positive this newsletter is! It's amazing!

Posted: Thu Feb 04, 2010 5:31 pm
by annad
Like the song says. . . . I've got a feeling. . . .
Great news!