Posted: Thu Feb 11, 2010 12:43 pm
Hi HappyPoet
Sorry to hear of your 'Good News and Bad News' situation.
I don't want to be seen as being intrusive (and I may have missed a previous post explaining...) but I was wondering what were the reasons for the surgeons being unable to operate? I understand entirely that you may not want to post publicly- and you can always tell me to mind my own business. However, if you feel able to post, these are my queries.
Firstly, where was the CCSVI identified - USA, Poland - Dr Simka or elsewhere?
Secondly, was it a definite no, no or was it more a question of being unable to operate at this point of time but the situation might change? As far as I am aware it is very unusual not to be able to correct such a problem - although I seem to recall reading about someone who had very wide flat veins which ideally required a stent but the width posed a logistical difficulty. I think that there are quite a few cases where it is considered too dangerous to use stents and the patient therefore has to confine theirselves to angioplasticy, even though the vein might reblock. But at least in these cases something can be done.
Sorry to hear of your 'Good News and Bad News' situation.
I don't want to be seen as being intrusive (and I may have missed a previous post explaining...) but I was wondering what were the reasons for the surgeons being unable to operate? I understand entirely that you may not want to post publicly- and you can always tell me to mind my own business. However, if you feel able to post, these are my queries.
Firstly, where was the CCSVI identified - USA, Poland - Dr Simka or elsewhere?
Secondly, was it a definite no, no or was it more a question of being unable to operate at this point of time but the situation might change? As far as I am aware it is very unusual not to be able to correct such a problem - although I seem to recall reading about someone who had very wide flat veins which ideally required a stent but the width posed a logistical difficulty. I think that there are quite a few cases where it is considered too dangerous to use stents and the patient therefore has to confine theirselves to angioplasticy, even though the vein might reblock. But at least in these cases something can be done.