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prof8 wrote:Thanks Sammy Jo for doing the interview. It was great!
Yes, really, wow SammyJo + all the others in the interviews!
The media gets rolling - even my boss in UK (who knew went to Poland for doppler and why) sent me a SMS that he had finally seen CCSVI on BBC and that s.o. there was going to Poland !
Thanks a lot for all of you collecting these videos + news here!
Let us not forget Putnam
Posted: Thu Feb 11, 2010 9:58 pm
by Ruthless67
I’m reading where folks are disappointed that Dr. Zamboni said, those with severe disability that he's treated have only experienced "less fatigue and were less tired and more positive".
Elsewhere on this board are discussions about MS. Doctor, Tracy Putnam, and his early research. I couldn’t find the thread I wanted, I found plenty of “Putnam” treads just not the right one, lol.
The one I was looking for talked about why his research got buried and as I remember, which probably is not anywhere close to a quote, it went something like this.
Once Dr. Putnam announced his theory, MS patients clamored and besieged him wanting a Cure & wanting it Now so he tried, I believe? Oral Vascular medications or something like that?? (I’m probably technically wrong here, but hear me out anyway, cause that's not the point I'm trying to make.)
The point being,...... they didn’t work, so NO Cure, and life went on, his work got buried and the auto-immune Theory prevailed.
What concerns me is a parallel to what is happening today with Dr. Zamboni. The MS Societie's in the Media coverage I’ve seen so far hint at this scenario. Saying something close to “Our phone where flooded with phone calls, our offices were besieged, our work ground to a halt! These pesky MS’ers lumbered in with their wheelchairs and canes and just kept coming, and coming, looking for a miracle. And now, look folks, it’s a fluke, people aren’t jumping straight out of their wheelchairs after “The procedure” they are not "Cured.” So don’t stop taking your current medications and be sure to watch for our updates on the New Oral Drugs which will be coming soon, made available to you through your local friendly Neurologist!”
So ALL of you pioneers who have had the procedure done, please like Sammy Jo stated so eloquently, "Don't worry, I'm looking forward to making an impressive comeback! That is why it is so important that those of us who were early pioneers, and lucky enough to get the treatment, post our results in the CCSVI Tracking Log here at TIMS. We have to write our own case reports, honestly, the good, the bad. This will help other patients decide on trial participation, and help doctors develop good diagnostic protocols, treatment procedures, and follow up therapies for CNS repair. If it weren't for the resources posted here at TIMS by those who went before me, I would not have had the confidence to try this."
Let’s not let this information stagnate, we’ve got research to do!!! We may not have the “CURE” YET, but we’ve got a course set and it looks good, I mean, More than 55 percent !!!
Lora
Posted: Fri Feb 12, 2010 2:20 am
by AndrewKFletcher
Inclined Therapy works for PP and SP ms!
Have you been reading the results so far on the Inclined Bed Therapy Threads?
Why isn't this mentioned in tv programmes and news articles? Zamboni says the liberation procedure has not been shown to work with either of these conditions and he is also probably refering to those people with RR ms who didn't respond to the proceedure too.
It's about time everyone on the forum began to sit up and take note about the posts on the Inclined Bed Therapy threads!
In 1995 I was showing how a simple posture change could alter varicose veins. Chronic Venous Insufficieny. The first ms pilot study proved this venous / circulation connection with ms, yet was ignored.
The second larger study also confirmed it.
Now we are beginning to get reports in about vascular changes from people who have adapted their beds.
Joan has already found this last link (she's in the comments), but thought I'd share on this thread the fact that someone in the know certainly agrees with us regarding media silence in the US. If nothing else, it backs us up!
!