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angel of death.......

quote " with the findings from the buffalo study you can throw that theory out the window "

those numbers are better numbers that he has ever seen in any of his drug trials of death. futher more this is a so called professional, who should no better than to critisize, that needs to deal with his underlying personal issues before he spouts his verbal diarrhea. But on a more positive note the more he makes these idiotic comments the faster his credability dissipates and people will start thinking twice about his motives.

sorry for the negativity group but this world renowned neurologists childish remarks are starting to irritate me.

I'm sure Dr Freedman was a good doctor at some time !!!!!!, but would this be the same Dr Freeman who apparently called Zamboni's research "a hoax" - see Ashton Embry's (direct-MS) comments on the National Post article. And of course this would be the same Dr Freedman who heads the Ottawa MS Clinic and who is advisor to the MS Soc Ottawa Chapter. How can we win when we have people like this giving their nonsensical version of things (in this case the Buffalo study) to our mainstream media ???????? So Markus 77 I don't think your topic is negative and I certainly hope Dr Freedman logs on to read what his comments do to us.

as a matter of fact it is........ ha. well said welshman.......

Markus - you are completely right! This Dr. Freedman is the same one who asked Dr. Zamboni, if he would replicate his theory using mice and Dr. Zamboni responded: "I treat humans not mice"....but what do you expect after Dr. Freedman has been doing MS research for many years and never found the correlation between MS & CCSVI (this goes for many neurolgist/researchers).

I've found a video of him on a german website talking about early treatment:

http://www.arzt-aspekte.de/videos/multi ... _51_1.html

There's german voiceover to his talk but they key sentence he's saying is: "The number one reason why a treatment doesn't work is that the wrong disease is treated."

So the treatment surely is right, but the diagnosis might be wrong...

Cannot even comment that.

its good to see i am not the only one who has this opinion........thanks MSers

Markus, you can add my Belgian GP to the list...
Lucky him I do not reveal his name...

fortunately he is not my neurojogist...............

Have any of Dr. Freedman's theories panned out? Not that I'm aware of which says something about his life's work...Why are so many neuro's so quick to attack Zamboni, who might REALLLLY be on to something?!!!! It just sickens me ...

i honestly believe its because they feel threatened..............and they dam well should be.

Listened to Dr F on the radio re: CCSVI and realized after + 15 years time is limited thank time for the new diagnostics. Am still in disbelief that yrs of MS have lost respect for most neuros They do understand that the iron was discovered in the lesions + 100 years ago as soon as the neuros got in control of research we were the losers "big time" have a hard time not being a cynic. The 52+% still kicks the heck out of 33%.

As has been mentioned "I'm running out of wait", work in the medical field and am embarrassed how an economy was made of others misery and loss!
Sorry for the rant.

Kuly

"angel of death..."

I try not to get to down on the neurologists, but personal experience we've been through is not pretty. My husband refers to watching me slog through the years of injectable or IV chemotherapy MS meds as my Mengele Medicine era.

People like Freedman can only affect you if you let them. They cannot beat down the truth, and the truth of CCSVI/MS will out, either way.

I think that it is important (it is for me, anyway) not to invest everything into any ideas until they have been proven - especially emotions. CCSVI is the only thing in the MS world that has ever made sense to me, and I am seeking diagnosis and treatment (and nothing can get in my way in that regard), but I will only be 100% invested if it helps me. I wholly believe every success story that I have read here - major and minor, but I still seek my own truth.

Research is being undertaken, and will be undertaken, and the squawking and quacking of people like Freedman will not be able to affect that. Real medical scientists look at data, not at fossils. Freedman is a fossil. Ignore him.

Dr Freedman currently heads up studies in immune ablation and autologous stem cell transplants for MS (ASCT) His major concern about CCSVI is harm to MS patients....this is a great irony to me.

Mark S. Freedman, University of Ottawa, Ottawa, Ontario, Canada, described the beneficial effects of immunoablation plus autologous stem cell transplantation (ASCT) in the Canadian BMT trial of patients with aggressive MS. Among 16 patients who had failed 1 year or more of standard treatment, 6 exhibited sustained improvements in Expanded Disability Status Scale (EDSS) scores after follow-up ranging from 1.5 to 8 years, while 7 patients remained stable and 3 worsened compared to baseline.

http://www.neura.net/channels/1.asp?id=1049

Sounds great, right?

Due to patient safety considerations (one early death due to busulfan-induced complications), busulfan dosing was later modified from 1 mg/kg/dose every 6 hours for 16 doses to 0.8 (0.6 in future) mg/kg IV for 16 doses, to avoid first pass effects and to minimize liver toxicity, Dr. Freedman noted.

link

I guess death and liver toxicity aren't as bad as the risks of having your veins scanned....but does ASCT work for every MS patient??

In conclusion, our data show that axonal damage and demyelination are both active in patients with long-standing disease and high EDSS scores following autologous stem cell transplantation and the immunosuppression associated with it. It is therefore unlikely that AHSCT and/or potent immunosuppression halts disease progression, despite suppressing the inflammatory aspects of the disease.

http://brain.oxfordjournals.org/cgi/con ... l/awl370v1

If ASCT can kill, harm and ultimately does nothing for progressive MS patients, why not let those MS patients have their veins scanned, Dr. Freedman? Just a look?

great facts cheer........... a wolf in sheeps clothing.