This Is MS Multiple Sclerosis Knowledge & Support Community

Anecdote, can you tell more? What exactly do you take?? I am also progressiv at edss 7.

Hello Danegirl,

The best place to look is on my husband's website, since he is the one who treated me:

http://www.davidwheldon.co.uk/ms-treatment.html

You can find his address there to write to him.

I finished the treatment after four years and have had no recurrence of symptoms since. Unfortunately people seem to balk at the idea of antibiotics.

Sarah

I do not see conflict with CCSVI. Antibiotics topic can be discussed on TIMS here: http://www.thisisms.com/forum-28.html

I am worried that these UK docs will miss things when they first start looking for blocked veins etc. It is a learning curve, but the info is important for any person going for these tests.

Daisy3 wrote:I am worried that these UK docs will miss things when they first start looking for blocked veins etc. It is a learning curve, but the info is important for any person going for these tests.

Hi Daisy, Squiffy has good news regarding this (on other UK thread):
"This is why scanning is not already underway as the ultrasonographer is being trained to the Zamboni Protocols to ensure that the clinic's testing is identical to Dr Zamboni's.

Will update all via both the MSRC's CCSVI pages and here as an when we hear anymore.

squiffs"
Thanks Squiffy, for informing us.

Will keep on keeping on

Zeureka wrote:

Daisy3 wrote:I am worried that these UK docs will miss things when they first start looking for blocked veins etc. It is a learning curve, but the info is important for any person going for these tests.

Hi Daisy, Squiffy has good news regarding this (on other UK thread):
"This is why scanning is not already underway as the ultrasonographer is being trained to the Zamboni Protocols to ensure that the clinic's testing is identical to Dr Zamboni's.

Will update all via both the MSRC's CCSVI pages and here as an when we hear anymore.

squiffs"
Thanks Squiffy, for informing us.

Thank you:-)