Page 1 of 1

Timeline for ccsvi study-Canada

Posted: Thu Feb 18, 2010 2:22 pm
by Andie

Posted: Thu Feb 18, 2010 2:56 pm
by AlmostClever
The maximum grant is $100,000 per year? for 2 years max?

What a joke! I read somewhere that the Buffalo study is going to take $5 million (someone check that number pls) !!!

I bet there's a maximum number of grants also - like,ummmm, 1?

Posted: Thu Feb 18, 2010 4:52 pm
by dunkempt
The maximum grant is $100,000 per year? for 2 years max?

What a joke!
No, I think the MS Society wants to help with postage.

-d

Posted: Thu Feb 18, 2010 4:53 pm
by markus77
actually i think postage is COD. : )

Posted: Thu Feb 18, 2010 5:12 pm
by cah
Here's what they've funded in 2008 (the money figures start at page 20):

http://www.mssociety.ca/en/pdf/research ... s_2008.pdf

On their site, I've found another pdf file that could be helpful for pushing CCSVI. It's called "Handbook for Government
Relations and Advocacy"

http://www.mssociety.ca/en/pdf/socact_g ... ngDiff.pdf

Posted: Thu Feb 18, 2010 5:40 pm
by AlmostClever
Pages 20-26 made me sick!

Posted: Fri Feb 19, 2010 12:22 am
by ms2009
The current distribution of MS society funds reflects the current interest of its executives. It is very important to push them to look at the other end. The only way to do that is to tell donors to be specific about one type of treatment and to explore this option further.

using the MS Society handbook on taking political action

Posted: Sat Feb 20, 2010 11:57 am
by Brightspot
Thanks Cah for posting the MS Society link regarding how to go about taking political action. Since the the MS Societies are doing nothing to advance the chances of those of us with MS getting tested and treated for CCSVI, we really do need to take this matter to our elected representatives.

Posted: Sat Feb 20, 2010 1:23 pm
by berriesarenice
AlmostClever wrote:Pages 20-26 made me sick!
Yup, the disparity is pretty staggering.