Situation in Italy...your views?
Posted: Sat Mar 06, 2010 12:34 am
This for the situation in Italy:
Zamboni just said in an interview start March:
"Lavorando bene la parte diagnostica potrebbe essere disponibile in molti centri distribuiti nel territorio nazionale entro l’anno. Lo studio terapeutico finirà per forza di cose invece fra due anni, e in tutta sincerità la mia aspettativa è che porti come regalo una nuova aggiuntiva arma efficace contro la SM."
= "Working well the diagnostics could be available in many centres across the Italian territory within this year. The therapeutic study is however contrained to be finalised only within 2 years, and in all frankness my expectations are that it will bring as present a new efficient additional weapon against MS."
On 3 March the Italian media was also active (e.g. on TG3 there was a report about CCSVI), followed by a move in the Italian Parliament.
However, it would seem that treatment is still limited to the former Zamboni research participants. Those who had been started on with a doppler within the studies and the ethical Committee had blocked them (now unblocked) and some of Zamboni's patients that had restenosis, so he then repeats the intervention.
In my view, as it looks, the treatment will not be inserted in the Italian health care system, before AT LEAST this 2 year study period Zamboni mentions will be finished. Whether interventions will be possible upon private payment, this is a mystery, and if so, the waiting list is already certainly as long as in other places...
Why do I reflect on this? Since I have long still be hesitating to go to Poland hoping still for Italy - have however performed doppler as well in Poland at first, followed by Ferrara (via the non MS-trick) last month. With Ferrara telling me the list of request is loooong, I should now wait - and not call - be patient...but in the Italian way! No word or tyniest indication how long... am also onthis mega-waiting list in Bologna. But that's only for doppler anyway and they have not even started there calling people!
But seems I cannot be patient, as understand waiting could mean more than a year or even two/three. So now have decided to accept my Poland listing for this spring...and pay that sum... and I'm planning to maybe ask just for ballooning without stent, so in 1-2 years, should my listings in Italy open up, can always repeat, as they do it now. I think that cannot harm, except my pocket for the cash... but could be a good investment would think to feel better
Any comments on this? Your views could be very interesting for me. Either way. Thanks !
Zamboni just said in an interview start March:
"Lavorando bene la parte diagnostica potrebbe essere disponibile in molti centri distribuiti nel territorio nazionale entro l’anno. Lo studio terapeutico finirà per forza di cose invece fra due anni, e in tutta sincerità la mia aspettativa è che porti come regalo una nuova aggiuntiva arma efficace contro la SM."
= "Working well the diagnostics could be available in many centres across the Italian territory within this year. The therapeutic study is however contrained to be finalised only within 2 years, and in all frankness my expectations are that it will bring as present a new efficient additional weapon against MS."
On 3 March the Italian media was also active (e.g. on TG3 there was a report about CCSVI), followed by a move in the Italian Parliament.
However, it would seem that treatment is still limited to the former Zamboni research participants. Those who had been started on with a doppler within the studies and the ethical Committee had blocked them (now unblocked) and some of Zamboni's patients that had restenosis, so he then repeats the intervention.
In my view, as it looks, the treatment will not be inserted in the Italian health care system, before AT LEAST this 2 year study period Zamboni mentions will be finished. Whether interventions will be possible upon private payment, this is a mystery, and if so, the waiting list is already certainly as long as in other places...
Why do I reflect on this? Since I have long still be hesitating to go to Poland hoping still for Italy - have however performed doppler as well in Poland at first, followed by Ferrara (via the non MS-trick) last month. With Ferrara telling me the list of request is loooong, I should now wait - and not call - be patient...but in the Italian way! No word or tyniest indication how long... am also onthis mega-waiting list in Bologna. But that's only for doppler anyway and they have not even started there calling people!
But seems I cannot be patient, as understand waiting could mean more than a year or even two/three. So now have decided to accept my Poland listing for this spring...and pay that sum... and I'm planning to maybe ask just for ballooning without stent, so in 1-2 years, should my listings in Italy open up, can always repeat, as they do it now. I think that cannot harm, except my pocket for the cash... but could be a good investment would think to feel better
Any comments on this? Your views could be very interesting for me. Either way. Thanks !