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Test Done
Posted: Mon Mar 08, 2010 6:40 am
by seabee22
IN Ireland. Have MS since 91 Had a Scan on neck & juglers. Is was a duplex scan . which am told it is equivilent to Dopplar. All looked normal. what should I do
should I do. anyone please heph here
Re: Test Done
Posted: Mon Mar 08, 2010 11:45 am
by kenneb9
seabee22 wrote:IN Ireland. Have MS since 91 Had a Scan on neck & juglers. Is was a duplex scan . which am told it is equivilent to Dopplar. All looked normal. what should I do
should I do. anyone please heph here
Where you sitting and laying down? Did they use Zamboni's protocol. Did they view your Azygos vein? If, the answer is no you need more testing. What do others think?
Posted: Tue Mar 09, 2010 5:21 am
by costumenastional
Seabee, have the doctor examined anyone else for ccsvi ever before?
You see, each and everyone of us would already have a positive or negative diagnosis so far if only it was that simple.
You should try to get tested by an experienced ccsvi doctor whenever possible, wherever possible.
I didn't have had a doppler exam just yet simply because they do not know what CCSVI is ;)
Posted: Tue Mar 09, 2010 10:07 am
by seabee22
:? First answer. Yes I was tested sitting & lying down.... Not too sure about
The Vein you mentioned. Just said all looks normal. Which did surprise me.
Told me that ccsvi is very new & things may change in six, twelve, and up to eighteen mths. The vascular surgoen is all behind me & wants to facilate me in any way possible. Told me to send on my scans to someone who is actively involved in this ie experental procedure. But my scan showed up as normal. Have to say was disappointed in a way. Now I am wondering did I have the right scan.
2nd answer. There was only 2 of us that requested the scan. lots have never heard of this. That was Jan....Bye now lots more know.