Posted: Thu Apr 08, 2010 4:27 pm
And Holly must be working overtime since I rec'd an email and she's posted on this site - both of which were way past 5:00 EST. Gotta love the devotion from that office!
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lyon, i see that you enjoy the debate, but its not a gamedrsclafani wrote:
Quote:
Dr. S-
The docs in Poland discovered 95% of their MS patients had ccsvi stenosis. Was your experience similar with the folks you've treated?
no. It has been 100%. But i am sure someone will be normal sometime
Dear drsclafani
Not to put you on the spot but this is hitting on the crux of the biscuit.....how confident are you that "normal" doesn't also include venous stenosis?
Of course the natural assumption is that venous stenosis isn't a common factor in the general public and Zamboni (unconvincingly-without adequate testing) showed little or no stenosis in his controls, Buffalo showed higher rates but less than MS, also not utilizing adequate testing.
I'm not going to use this guy Twisted Evil because I don't feel that way, but honestly, considering that the most conclusive test of venous obstruction is catheter venogram and that has yet to be used on a control, how can it convincingly be considered that "normal" is synonymous with lack of stenosis?
I'm still on the Sclafani bandwagon....if you make this convincing Laughing
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You had said early on that you had not seen these sorts of twisted malformations before...I had not known for sure what that meant exactly or how often you were up in the neck looking...this answers that question and then some.drsclafani wrote: working for 38 years , i guess that is ober 3,000 arteriograms on otherwise normal people without MS, (my general patient population is young healthy african american males). I never see the slow flow, the narrowings, that i see on the VENOGRAMS of caucasian MS patients.
I think it was his sarcasm showing again when he said you win.... But seriously Lyon welcome aboard....Lyon wrote:As you mentioned this isn't a game so any winning doesn't come that easily.
HAHAHA I wouldnt bet on that my dear doctor...drsclafani wrote:no. It has been 100%. But i am sure someone will be normal sometimeDr. S-
The docs in Poland discovered 95% of their MS patients had ccsvi stenosis. Was your experience similar with the folks you've treated?
Count me in, I'd love to help!drsclafani wrote: I have been thinking about how to harness the energy and experience of patients on this site. I have fantasized about creating research measurement tools to learn about the subjective experiences after liberation. Imagine capturing the data and partnering on such a project.
what do you think?
Oh, doc, great idea, I guess many of us would! Standard criteria and research measurement tools assisting interventionists in developing comparable observational studies on CCSVI across the world would be great! Such observational studies could then support the direction of results from clinical trial work, I guess!Mutley wrote:Count me in, I'd love to help!drsclafani wrote: I have been thinking about how to harness the energy and experience of patients on this site. I have fantasized about creating research measurement tools to learn about the subjective experiences after liberation. Imagine capturing the data and partnering on such a project.
what do you think?