Posted: Fri Apr 23, 2010 11:11 pm
Dr Sclafani,
When had heard of Kuwait action and results, thought this it! I was hoping this would open up the doors! Thanks so much for reporting to us about your views on the protocols (could not have been more positive!) and efforts for sharing experiences with Kuwait and other CCSVI researchers!
In case you would have any additional comments on the following statements?
confirms the association between ms and ccsvi.....surprise!
CTV News Article 9 April: >>CTV News has confirmed that Kuwait's minister of health has given interventional radiologists in the country the go-ahead to use the state-financed medical system to begin treating patients who have blocked veins and abnormal blood flow in their necks...
The procedure will not be performed to treat MS per se but to treat only "improper blood flow" in the veins. So we say this is a vascular problem in the neck. Patients, when you dilate the veins, they feel better. We don't have to talk about MS or the link to MS," said Sinan.<<
>>No stents were used in the procedures, a practice some doctors around the world have tried and one that Dr. Zamboni does not endorse.<<
=> This non-MS approach and general anti-stent policy does now not seem to reflect the protocols? Stating:
>>AIM & OBJECTIVE:
In Kuwait the MS patient is increasing and it is estimated about 3000 – 6000 patients. This program started in March. 2010, it is multidisciplinary approach, vascular diagnostic lab. doctor, vascular surgeon, and vascular intervention radiology, radiologist and neurologist.
Our objective to diagnose MS patient with Chronic cerebrospinal venous insufficiency (CCSVI) and to evaluate them with Duplex scanning and magnetic resonance venography and to evaluate clinical and or radiological improvement of these cases after treating them with angioplasty with or without stent of the diseased affected part of the internal jugular vein,
This method is a new application of a standard procedure that may be helpful in relieving some of the symptoms of MS patients with CCSVI and it was advocated in Italy, Poland and USA. In Kuwait we would like as usual to lead the way in the Gulf state and Arabian countries to study and assess the feasibility of such a new method of possible clinical improvement of some or all of the symptoms of MS patients which may help improve quality and functions of the patients and whether or not reach and meet our expectation, therefore we will do a pilot study of 100 patients and evaluate clinical improvement by a neurologist at 1, 3, 6, and 12 months. Colour Duplex scan at 1, 3, 6, 9, and 12 months intervals. MRV at 6 and 12 months intervals. MRI brain at 3, 6, and 12 months intervals. If the initial results of the study fulfilling our objectives then we will do more cases and continue the study for 1 year to include total 500 cases at least.<<
some clinical improvements great!
GREAT INDEED what is stated in addition to the improvements list Johnnybaby248 reported already from the link: http://www.ccsvikuwait.com/Details.aspx?d=4
>>THE RESULTS:
The angiography may stop MS progression, BUT it cannot
fix all symptoms, especially if axons have already been lost.
However, some symptom improvements (anecdotally reported) are
immediate, such as increased visual acuity and decreased (or
eliminated) brain fog, tinnitus, and fatigue.<<
When had heard of Kuwait action and results, thought this it! I was hoping this would open up the doors! Thanks so much for reporting to us about your views on the protocols (could not have been more positive!) and efforts for sharing experiences with Kuwait and other CCSVI researchers!
In case you would have any additional comments on the following statements?
confirms the association between ms and ccsvi.....surprise!
CTV News Article 9 April: >>CTV News has confirmed that Kuwait's minister of health has given interventional radiologists in the country the go-ahead to use the state-financed medical system to begin treating patients who have blocked veins and abnormal blood flow in their necks...
The procedure will not be performed to treat MS per se but to treat only "improper blood flow" in the veins. So we say this is a vascular problem in the neck. Patients, when you dilate the veins, they feel better. We don't have to talk about MS or the link to MS," said Sinan.<<
>>No stents were used in the procedures, a practice some doctors around the world have tried and one that Dr. Zamboni does not endorse.<<
=> This non-MS approach and general anti-stent policy does now not seem to reflect the protocols? Stating:
>>AIM & OBJECTIVE:
In Kuwait the MS patient is increasing and it is estimated about 3000 – 6000 patients. This program started in March. 2010, it is multidisciplinary approach, vascular diagnostic lab. doctor, vascular surgeon, and vascular intervention radiology, radiologist and neurologist.
Our objective to diagnose MS patient with Chronic cerebrospinal venous insufficiency (CCSVI) and to evaluate them with Duplex scanning and magnetic resonance venography and to evaluate clinical and or radiological improvement of these cases after treating them with angioplasty with or without stent of the diseased affected part of the internal jugular vein,
This method is a new application of a standard procedure that may be helpful in relieving some of the symptoms of MS patients with CCSVI and it was advocated in Italy, Poland and USA. In Kuwait we would like as usual to lead the way in the Gulf state and Arabian countries to study and assess the feasibility of such a new method of possible clinical improvement of some or all of the symptoms of MS patients which may help improve quality and functions of the patients and whether or not reach and meet our expectation, therefore we will do a pilot study of 100 patients and evaluate clinical improvement by a neurologist at 1, 3, 6, and 12 months. Colour Duplex scan at 1, 3, 6, 9, and 12 months intervals. MRV at 6 and 12 months intervals. MRI brain at 3, 6, and 12 months intervals. If the initial results of the study fulfilling our objectives then we will do more cases and continue the study for 1 year to include total 500 cases at least.<<
some clinical improvements great!
GREAT INDEED what is stated in addition to the improvements list Johnnybaby248 reported already from the link: http://www.ccsvikuwait.com/Details.aspx?d=4
>>THE RESULTS:
The angiography may stop MS progression, BUT it cannot
fix all symptoms, especially if axons have already been lost.
However, some symptom improvements (anecdotally reported) are
immediate, such as increased visual acuity and decreased (or
eliminated) brain fog, tinnitus, and fatigue.<<