A Crazy idea to try in combination with CCSVI liberation...
Posted: Sun Mar 21, 2010 4:06 am
Remember, I have no medical training, the following is simply my own crazy thoughts.
In simple terms, CCSVI would appear to be based on the condition causing BBB isues and the corresponding iron deposits, and then immune activation... blah blah....
Steroids are perported to "shut down" the BBB permeability. I have been using a pulsed prednisone regime, and personally think it has helped (there was at least one study that found it beneficial, specifically to SPMS and PPMS). I see it as a "manual" way to quickly shut down the BBB and also settle any current immune acvtivation. This would sound to me to be beneficial after treatment.
When I speak to the doctor who will be performing my "lebration", I will be specifically asking how soon before and/or after the ballooning will I be able to do a steroid pulse.
Has anyone here who has had CCSVI treatment tried a steroid pulse?
In simple terms, CCSVI would appear to be based on the condition causing BBB isues and the corresponding iron deposits, and then immune activation... blah blah....
Steroids are perported to "shut down" the BBB permeability. I have been using a pulsed prednisone regime, and personally think it has helped (there was at least one study that found it beneficial, specifically to SPMS and PPMS). I see it as a "manual" way to quickly shut down the BBB and also settle any current immune acvtivation. This would sound to me to be beneficial after treatment.
When I speak to the doctor who will be performing my "lebration", I will be specifically asking how soon before and/or after the ballooning will I be able to do a steroid pulse.
Has anyone here who has had CCSVI treatment tried a steroid pulse?