Mel's 10 month update
Posted: Tue Mar 23, 2010 6:28 pm
Greetings,
It's been a long time since I've been on this forum, for those who don't know me I'm Melissa's other half. Melissa is a 34yr old woman diagnosed with MS back in 2007 (seems a lot longer than that!) had HiCy treatment in 2008 at Hopkins, relapsed in 2009 and had three stents placed by Dr.Dake at Stanford in July 2009 as she was in the middle of a relapse.
The relapse disappeared after a few days.
You can click my user info for the whole story of course, this is just a quick update for those who know us and anyone else who may be interested.
Mel has continued to do very well, in fact I only thought about MS and CCSVI today as I saw an article on a tech website I frequent (singularity hub) talking about the Buffalo results which look promising.
We have been lucky enough to put MS behind us for now. Melissa continues to do very well and has no residual MS effects.
Even her eyesight has improved a couple of prescriptions and the pars planitis has stopped and even shows signs of 'clean up' with the snow banks reducing a lot.
Full time at work and is giving a massive presentation tomorrow in front of hundreds of doctors and phd's, she's a geneticist. Unthinkable only a year ago when keeping awake more than 4 hrs at a time was a small victory.
So for Mel this has been a complete success and the best thing is, if something does go wrong and 'it' comes back, we know what to do - there will be a blood flow issue and it can be repaired. That is the biggest comfort of all and allows us to move on (me more than her of course), not like after HiCy when we thought if this doesn't work then that's the end.
I wish you all the same results that Melissa has been lucky enough to achieve.
My mailbox is full on here but I can but I can be reached at jamie.keogh@gmail.com if any of my old pals want to catch up.
Cheers.
Jamie
It's been a long time since I've been on this forum, for those who don't know me I'm Melissa's other half. Melissa is a 34yr old woman diagnosed with MS back in 2007 (seems a lot longer than that!) had HiCy treatment in 2008 at Hopkins, relapsed in 2009 and had three stents placed by Dr.Dake at Stanford in July 2009 as she was in the middle of a relapse.
The relapse disappeared after a few days.
You can click my user info for the whole story of course, this is just a quick update for those who know us and anyone else who may be interested.
Mel has continued to do very well, in fact I only thought about MS and CCSVI today as I saw an article on a tech website I frequent (singularity hub) talking about the Buffalo results which look promising.
We have been lucky enough to put MS behind us for now. Melissa continues to do very well and has no residual MS effects.
Even her eyesight has improved a couple of prescriptions and the pars planitis has stopped and even shows signs of 'clean up' with the snow banks reducing a lot.
Full time at work and is giving a massive presentation tomorrow in front of hundreds of doctors and phd's, she's a geneticist. Unthinkable only a year ago when keeping awake more than 4 hrs at a time was a small victory.
So for Mel this has been a complete success and the best thing is, if something does go wrong and 'it' comes back, we know what to do - there will be a blood flow issue and it can be repaired. That is the biggest comfort of all and allows us to move on (me more than her of course), not like after HiCy when we thought if this doesn't work then that's the end.
I wish you all the same results that Melissa has been lucky enough to achieve.
My mailbox is full on here but I can but I can be reached at jamie.keogh@gmail.com if any of my old pals want to catch up.
Cheers.
Jamie