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CCSVI problems after surgery
Posted: Wed Mar 24, 2010 1:27 pm
by Rosegirl
It's difficult to find standardized answers from folks who have benefited from the liberation treatment. It seems like there are over 300 people now, and where is the overview of their progress? What happened short term? And how have things changed over time?
And how many patients have had bad experiences? Other than Rici, I haven't found any information on adverse effects of CCSVI. Is it because this is such a safe procedure? Or is it because that information is not (yet?) available?
Re: CCSVI problems after surgery
Posted: Wed Mar 24, 2010 2:01 pm
by Donnchadh
Rosegirl wrote:It's difficult to find standardized answers from folks who have benefited from the liberation treatment. It seems like there are over 300 people now, and where is the overview of their progress? What happened short term? And how have things changed over time?
And how many patients have had bad experiences? Other than Rici, I haven't found any information on adverse effects of CCSVI. Is it because this is such a safe procedure? Or is it because that information is not (yet?) available?
Judging from the responses of people who have given their narratives, and Dr. Zamboni's papers, it would seem the main adverse after effect is that in venoplasty, there's a real chance of re-stenosis.
Donnchadh
Posted: Wed Mar 24, 2010 2:22 pm
by Ruthless67
Rosegirl,
There's also been some accessory nerve flare-ups in some stented patients, and I read that no one likes the side effects from having to take coumadin post-surgery.
Lora
Re: CCSVI problems after surgery
Posted: Wed Mar 24, 2010 3:09 pm
by Rici
Rosegirl wrote:It's difficult to find standardized answers from folks who have benefited from the liberation treatment. It seems like there are over 300 people now, and where is the overview of their progress? What happened short term? And how have things changed over time?
And how many patients have had bad experiences? Other than Rici, I haven't found any information on adverse effects of CCSVI. Is it because this is such a safe procedure? Or is it because that information is not (yet?) available?
But me, two more in Poland, one is here :
http://www.thisisms.com/ftopict-10758.html
I've already got out.
Regards
Rici