This Is MS Multiple Sclerosis Knowledge & Support Community

Thanks for the update, Badger. Onwards and upwards! Will look forward to the link.

How is Tiger Tim doing? Has he noticed any improvements or anything?

L x

He has had great improvements:

He can use cutlery to eat food.
He can read a neswpaper.
His speach is much clearer.
His legs do not go into spasms as much.

He is still in his wheelchair but it is progress and long may that continue.

Great news!!!:)

Thanks for keeping us updated Badger
May your improvements keep coming.
Good news about Tiger Tim too.
Can you not do something about this weather it's freezing!!!!

Thank you indeed!

Those updates are such "emotional fuel" to me.

8 Weeks -

Still feeling great. Yesterday I walked down, yes down the stairs without holding on to a railing. It was slowly but it is progress as before I would have to hold on to something.

I have also been to see a MS Physio and she pointed out a weakness in the muscle at the front of my calf and a stiffness in the rear. I have been given a simple excersize to do which involves, lifting my foot from the heel and slowly bringing it down. I have another appointment in 3 weeks and hope she can see further progress.

She also told me to walk around the house in my bare feet and I can do this a lot better already. The problem in the beginning was walking on the balls of my feet, now I am on my heels and loving it.

It is great that I am no longer thinking about how I may get worse due to my MS and now I can only find new ways to improve!!!!!!!!!

Excellent news, Badger. Keep it up!

Great work Badger. So happy for you ...

Make sure you ask her for a refill of that placebo too (joke).

Badger,

Great to hear your feeling great and still finding improvements.

Could you raise your foot from the heal before your procedure or was that one of your MS symptoms? I cannot raise my left foot from the heal at all, just wiggle my toes. My Physio was using a electro muscle stimulator while I tried to raise it, to try and build up the front calf muscle. I could feel the muscle tighten up.

How are you finding the temperature tolerance to heat now that June is near?

Keep the improvements coming,
Stephen

I was able to lift my foot with my heel but my left foot would tremor, the physio has given me the exersize to help build the muscle around my calf. She also said the reason that it will tremor is due to muscle weakness so I have been doing the small exersize, it is maybe not even a type of exersize but a movement because I can do it while I sit.

I can notice improvements already and I only seen the Physio last week.

I have very little problem with my heat tolerance now, it has only been tested in Scotland though!! I have sat in the garden for hours with the sun shining and had none of the problems I would have before, like needing to go into the shade or feeling extremely tired or weak.

10 Weeks -

Still feeling good, no further improvements though. I was sitting in the sun again yesterday, the whole day without any problem.

This is becoming the norm now and is something I was not expecting, no not the good weather in Scotland!! my ability to sit for the entire day in the sunshine!!

Will keep you posted on any improvements.

I am nearing 3 months post-procedure and this is when the Dr in Poland advised that I should begin to see any improvements. So I am hoping for some new improvements!!! BRING IT ON.

Badger,

That's great news. I wish you plenty of sunshine(vitamin D ) and many more improvements.
Cheers.
Stephen

Can someone please define the criteria used to differentiate between these forms?

I see Zamboni said that PPMS didn't respond so well to CCSVI treatment.

I have never been given a firm dx, just progressing downhill for many years, but I did have just one attack which took me off my legs until prednisolone tablets put me back to square one. A current 5 a day course of 100mg has brought some improvement in strength, but I am very wary of the downside of steroid use.

I've read that an early symptom improvement following ballooning is a feeling of warmth returning to legs, hands and feet. Does this occur on both sides of the body, or do both left and right jugulars need to be done for this to occur?