This Is MS Multiple Sclerosis Knowledge & Support Community

THANK YOU KAREN. JUST JOKING I ACTUALLY LOVE THE BOO. I JUST KNOW BECAUSE I LIVED IN CANADA FOR 30 YEARS. I AM GLAD I GOT THE EARLER DATE BUT GOING INTO PANIC MODE NOW. SILLY BUT THAT IS ME. IF YOU ARE ON FB YOU SHOULD LOOK ME UP. I HAVE A FEW TIMS PEOPLE NOW.

IAKE CARE.

LIVA

HI caraboo really please too hear hope all goes well my dad is booked sometime in september we are just waiting on the appointment date. please will u keep us updated

GEEPS EVERYONE IN THE UK SHOULD READ THIS LINK. BRITISH GOVERNMENT IS REALLY NOT WILLING TO LISTEN TO US. GLAD I AM GOING TO POLAND THIS IS SO TYPICAL.

LIVA

http://www.number10.gov.uk/Page23057

My granddaughter is booked in at The Essential Health Clinic for Aug 9 but I received an Email today saying that they have been overwhelmed by applications and have now had to close their appointment list for the time being.
Like many of you I have a few reservations about Dr. Gilhooley's motivation but in his defence he has flagged his intentions of providing a Zamboni trained radiologist for some time and it shore beats the hell out of waiting for the NHS to get their ass in gear - sometime never!
The MSRC seem to find him credible and for those of you who would like to check him out that might be a good place to start. www.MSRC.co.uk
He seems to have been heavily involved in the use of LDN (Low Dose Niatrexone) in the treatment of MS for some years and I believe there are "many thousands" of MSers mainly in the USA who find that treatment beneficial. I would be interested to hear other opinions on both counts

HI I HAVE JUST STARTED LDN AGAIN. I FIRST STARTED ON 3 MG AND I STUPIDLY UPPED IT TO 4.5 MG THINKING IT WOULD DO EVEN MORE. IT WAS A BIG MISTAKE MY SYMPTOMS WENT WAY WORSE. I CAME OFF IT FOR A WEEK I HAVE JUST STARTED ON 1.5 MG WHICH IS WHAT I SHOULD HAVE DONE AND I WILL SEE HOW IT WORKS. EH SOUNDS GOOD TO ME THEY SEEM TO HAVE A HOLISTIC APPROACH TO MS WHICH IS GOOD. I THINK LDN AND EH ARE DEFINITELY WORTH A TRY. OUR COUNTRY IS SO NOT SUPPORTIVE OF ANY OF THIS. DRUG COMPANIES SEEM TO RULE. GOOD LUCK WITH EVERYTHING.

LIVA

Hi Liva,
Thanks for the quick response - I trust the new regime will work well for you and look forward to watching your progress.
Harry

TANKS HARRY. WE CAN ONLY TRY. BASICALLY WE HAVE TO TREAT OURSELVES IN THIS COUNTRY. I HOPE AT LEAST EH WILL BE ABLE TO REFER YOU TO A VASCULAR SURGEON. KNOWING THE GOVERNMENT HERE THEY WILL TRY TO STOP THAT. IF I CAN HELP YOU AT ALL PLEASE FEEL FREE TO ASK. I WILL BE POSTING MY RESULTS. TAKE CARE.

LIVA

Sweetpea I have to agree with you. I am worried about that aspect too. However if he can help I suppose that we should not be cynical.