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berries are nice in Poland

Posted: Thu Apr 08, 2010 2:48 am
by berriesarenice
I had better quick start a thread. I am in Katowice, lying in the hospital bed, hooked up to an IV. Dr. Simka just did our Doppler Ultrasounds, and there are 3-4 patients in front of me for the procedure. Time is running out to record my "before" symptoms, so here goes...

Before:
Fatigue, very bad
Numbness all over
Migraine headaches
Brain fog
Memory loss
Trouble finding words
Balance loss
Clumsiness (drop things)
Blurry vision when tired
Weak legs when tired

The Doppler showed a large right IJV (normal is 7 mm, mine is about 20) due, he thinks, to a malfunctioning valve. He thinks they'll need a big stent (although I'm still hoping for balloon) and my left side had reflux, but that's all I know.

I hope to report back soon :)

Posted: Thu Apr 08, 2010 3:57 am
by Katie41
So excited for you!

Posted: Thu Apr 08, 2010 4:02 am
by colapesce
good luck, Berries!

Posted: Thu Apr 08, 2010 4:08 am
by WeWillBeatMS
Liberation. It's a beautiful thing. All the best berriesarenice!

faith, hope & love

Posted: Thu Apr 08, 2010 5:05 am
by ozarkcanoer
Best of luck... you are in good hands !!

ozarkcanoer

Posted: Thu Apr 08, 2010 6:03 am
by Enya
All the best on your liberation!
:D

Posted: Thu Apr 08, 2010 7:59 am
by annad
Oh for pete's sake, I thought someone was actually starting a thread on berries . . . . in Poland! :oops:

I blame my MS. . . that's my story and I'm sticking to it! :)

Berries, thinking of you! Best of luck!!!!
a

Posted: Thu Apr 08, 2010 8:06 am
by prairiegirl
Thanks for the chuckle, annad-- needed one after some of the recent news and postings :D
All the best to you berries; will look forward to hearing your "after" report.

Posted: Thu Apr 08, 2010 8:23 am
by Villagemaid
Good luck!!! So excited and happy for you!!!!!

Posted: Thu Apr 08, 2010 8:43 am
by berriesarenice
Thank you, thank you for the well wishes and prayers. Just out w/ a ballooned valve in the right IJV, a ballooned left IJV which was very narrow with three especially tight spots (he recommended a stent, but I opted out--not sure if that was the right call?), and finally a stent in the azygos which was so narrow that the catheter could barely fit through, and was getting no drainage. I got to see that amazing shot of blood suddenly flowing through as soon as the stent was in.
This has been such a gift.

Thank you again for all you kind words.

I guess I'd better rest a bit now.

Posted: Thu Apr 08, 2010 8:53 am
by catfreak
berries,

So good to hear about your procedure. Get rested and ready to feel much better!

Cat

Posted: Thu Apr 08, 2010 9:45 am
by annad
OMG Berries, what an experience! Rest and we hope to hear from you soon again.
Feel better soon ;)
a

Posted: Thu Apr 08, 2010 12:41 pm
by Cece
wonderful news...hope you are feeling better & better & better soon!!

All the best

Posted: Thu Apr 08, 2010 12:53 pm
by fiddler
I wish you a good sleep and a great recovery. I take it they have wireless in the hospital for you to use? Ah, the marvels of today's technology! :D

Posted: Thu Apr 08, 2010 2:35 pm
by ozarkcanoer
berries,

Wow, 3 stents !!! Here's hoping for relief from your symptoms ! Keep us posted.

ozarkcanoer