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Back from ultrasound test...
Posted: Wed Apr 14, 2010 2:06 pm
by Donnchadh
...and the technician doing the test said it looks just like before the liberation procedure. She found a collateral vein just 3mm beneath the skin!
So my hunch about re-stenosis seems to be correct. Will be seeing the IR on the 21st, and hope h will repeat the procedure but use stents this time.
Donnchadh
Posted: Wed Apr 14, 2010 7:36 pm
by SaintLouis
I'm "glad" to hear you most likely have re-stenosis, which would explain the return of some symptoms. I hope your IR is able to do something more permanent for you...maybe he could speak with Dr. Sclafani about the cutter-thingy he's been using as something to try if stents aren't what he wants to do? Good luck on the 21st.
Posted: Wed Apr 14, 2010 11:05 pm
by costumenastional
Good news friend. Go for it!
Angioplasty says Prof Zamboni on 14 April 2010
Posted: Thu Apr 15, 2010 4:57 am
by MarkW
Hello Donnchadh,
My understanding was 'Angioplasty (PTA) said Prof Zamboni on 14 April 2010'. The seminar lasted nearly 2 hours and is a bit technical but I suggest you review it before demanding stents. Note - ballooning is safe to repeat.
Good luck,
MarkW
Re: Angioplasty says Prof Zamboni on 14 April 2010
Posted: Thu Apr 15, 2010 5:16 am
by Donnchadh
MarkW wrote:Hello Donnchadh,
My understanding was 'Angioplasty (PTA) said Prof Zamboni on 14 April 2010'. The seminar lasted nearly 2 hours and is a bit technical but I suggest you review it before demanding stents. Note - ballooning is safe to repeat.
Good luck,
MarkW
If I can get the IR to insert stents, I definitely will. I am convinced that my "MS" or rather CCSVI started with a bad fall twenty years ago. I believe that the internal jugular veins have been permanently damaged as a direct result of that accident. My recent MRV shows a massive network of collateral veins developed as a bypass to the bilateral stenosis in the jugulars.
Also, there is the consideration of cost: each balloon procedure is mind blowingly expensive...I simply cannot afford to repeat this 3 or 4 times in the hope that one of them will "take." Better to use stents and be done with it.
Donnchadh
Posted: Thu Apr 15, 2010 5:16 am
by Asher
Mark, you certainly are a man of the letter. If ballooning would be readily available and covered by insurance this would be a viable option. As it stands right now, I would go broke if I would need to repeatedly travel to Poland or India.
Money is important
Posted: Thu Apr 15, 2010 5:31 am
by MarkW
Hello Asher and Donnchadh,
I appreciate that ballooning is not cheap and is unlikely to be available from insurance/public medicine before the research is completed. You know the risks of stents so are most definitely 'informed patients'. Its your right to make the choice, in my view.
Kind regards,
MarkW
PS Note to self - I must do something more useful than the CCSVI chatroom, even if it is entertaining.