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Super Heros.

Posted: Fri Apr 30, 2010 8:12 am
by BELOU
Fiddler, by the way, as we discussed earlier in private, I sent my friend ASTRO to fill the volcano with a bunch of heavy rocks in order to let your plane reach Poland. Please do not thank me, thank ASTRO...

I'm so glad they found narrowed veins... I believe that Buffalo were wrong with their 56%...

Please take care and good luck !!!

Marc

Second day after liberation...

Posted: Sat May 01, 2010 2:40 am
by fiddler
It's a rainy day here in Katowice and, since it is a holiday (Labour Day) all the stores are closed and we won't be able to get all those souvenirs and gifts we were planning to give to friends and family at home (that's our excuse, at least).

Last night a dozen of us "liberatos" and spouses/friends had a drink with Marek (who is leaving on an all-around-Poland walk for MS on Monday) at the Sky Bar and then took him out to the Via Toscana restaurant. That was our first opportunity to meet Tony and his son and Raj and his family. Tony and Raj had both been treated on Wednesday, so were in Val's "graduating class". It was a fun evening though it ended with a bit of a scare: one of our liberated friends had a fainting spell and was taken back to the Euromedic clinic for tests. Although she is prone to fainting, the Euromedic people wanted to be sure that it wasn't related to the ballooning she'd had. She was at breakfast this morning, looking fine.

As far as symptoms go, I am not noticing any differences that can be ascribed to liberation, yet: my symptoms vary day to day (or even hour to hour) so it's going to be a bit hard to tell when some slight improvements occur until they remain for a longer period of time. Some of the people from the Wednesday cohort have noticed some significant improvements in their symptoms.

PS: Thanks for putting in a good word with Astro, Marc. :D

Posted: Sat May 01, 2010 2:29 pm
by eric593
Thanks for detailing your experience, fiddler.

Only time will tell the impact of the procedure. We all have high hopes but reality may involve simply not progressing any further. Or no result at all and a continuation of our disease. It's only through shared experiences that we can get an accurate view of how effective this REALLY is.

I really appreciate you sharing. Wishing you a positive outcome!

Back

Posted: Mon May 03, 2010 5:46 am
by fiddler
I got back home late last evening and had a good night's sleep. I hope to have some time later to write up an update (and start my tracking posting), but with regards to improvements it will be more about my "classmates" than about me since I have not noticed significant changes. My wife says my feet aren't as "blue" as before, but that tended to vary anyway.
...Ted

Posted: Mon May 03, 2010 6:50 am
by mags4short
Looking forward to the updates Fiddler, sorry that I missed you, I am heading off early in the morning.

Will keep a track of your postings, I hope that you see some improvements soon.

Mags x

Posted: Mon May 03, 2010 6:55 am
by Jaguar
Ted

I have to say the same - no improvements of any real note. But time will tell!

Paul

Images

Posted: Tue May 04, 2010 8:19 am
by fiddler
For those who might be interested, I've posted some images of my procedure on my blog: http://www.my-darn-ms.blogspot.com.
...Ted

Posted: Tue May 04, 2010 9:13 am
by annad
Thanks for sharing those/that, Ted.
Hope you are feeling well!
a
:)

Feeling well...

Posted: Tue May 04, 2010 9:33 am
by fiddler
Thanks, Anna, I am feeling well... just impatient to start feeling GREAT! :D
...Ted

Posted: Tue May 04, 2010 9:49 am
by newfie-girl
Fiddler............so glad to hear of your trip to Poland for Liberation. I wish you complete success and look foward to hearing about all the great improvements that are coming your way. Stay positive and don't despair, I know it got to be frustrating and you are excited and anxious to see the improvements quickly, but they will come in due time. Keep us posted..........God Bless :lol: :)

metoo

Posted: Tue May 04, 2010 9:55 am
by 1eye
see, that wasn't so hard doctor quackenbush, now was it? and just as you had hoped, no immediate improvement!

oh, he'll feel much better soon? now, now, don't be so negative, doctor.

"Either this man is dead, or my watch has stopped."

Dr. Q

Congratulations, Mr. Fiddler!

Posted: Wed May 05, 2010 7:34 am
by 81Charger
Glad to hear everything went well for ya, can't wait for the positive news to come in about your improvements.

Glenn

A first noticeable improvement

Posted: Wed May 05, 2010 7:42 am
by fiddler
Yes, a small thing, but definite, that I posted on my blog last night:
Tonight, as I do almost every night, I went to the gym to do my exercises. One of them I do on my back on a bench, straightening my arms with 15 pound weights in each hand. For the last 2 years my left arm has been weaker, to the point where I should really be using a lower weight - for those who do weights, you know how you really don't use a good technique when you try to use a weight that's too heavy. Tonight, for the first time in a LONG time, I actually lifted the weight with my left arm properly, and without any greater effort than I required with my right arm. It may seem like such a small thing, but since it was such a definite difference, it was really encouraging.
:D :D :D
...Ted

Posted: Wed May 05, 2010 7:51 am
by prairiegirl
Great to hear-- hope you see some more improvements in time. All the best for continued recovery:D!

Posted: Wed May 05, 2010 8:08 am
by tipsyturtle
Ted,
Happy to hear that things are moving in the right direction.
So sorry I haven't posted since my own liberation - been hanging out with friends and family in europe.
Soon,
jo :D