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first steps towards CCSVi South germany, YIPPPEEEE
Posted: Wed May 05, 2010 4:46 am
by coin
Just wanted to inform that we finally found a doctor ( he is so cool and nice) , which name i will not reveal, who is quite interested in doing all the tests and possible treatment etc...He already started contacting Zamboni, can you believe it, all by himself...so we are now waiting that he collects all the information he needs ( thanks to Joan ,Dr. Sclafani and Dr. Schelling already for helping) and then he will start with the doppler......and his time line to do the Doppler is within the next 2 weeks...YES WE CAN!!!;-))am so freaking, fucking excited....need to hold my horses....but as some others said alread before thanks to TIMS I had the enthusiasm and energy and faith to contact and pest doctors here in South germany ...will keep you informed ybout the progress:-))
COIN
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Husband MS
Posted: Wed May 05, 2010 4:54 am
by adamt
this is brilliant well done coin
im trying to find someone who will do the CCSVI tests/treatment as my original appointment has been delayed even longer!
I appreciate you dont want to reveal the doctor but could you share how i can find these clinics that do the testing/treatment please?
Posted: Wed May 05, 2010 5:21 am
by ErikaSlovakia
Hi Coin!
This is great news!
Erika
Posted: Wed May 05, 2010 5:26 am
by coin
lets keep our fingers crossed that evreything will be fine.....
)
Posted: Wed May 05, 2010 5:28 am
by mshusband
Great job coin ...
and my usual comment ... CCSVI grows just a little more.
Posted: Wed May 05, 2010 5:34 am
by coin
Danke schön und thank you....and could have not done it without my husband...
COIN
Posted: Wed May 05, 2010 5:43 am
by danegirl
I hope you will keep us informed. I am in Denmark, and it is only a hop to Germany. How far south? I am on several waiting lists, but this would be the nearest.
Posted: Wed May 05, 2010 5:44 am
by coin
Munich, which is kind of down south...ever been to the Oktoberfest??;-))
Posted: Wed May 05, 2010 10:36 am
by Cece
well done, coin!! I am impressed with how every doctor has their one first patient, the one who brings them the info on ccsvi and their own stenosed jugulars to test the theory, and it may well light a fire in the doc and turn out to benefit far, far more than just yourself!!