This Is MS Multiple Sclerosis Knowledge & Support Community

This is not intended to be negative or in any way putting down CCSVI or the providers of treatment.
As I follow the feedback from the lucky ones who have had treatment it is becoming obvious that it is possible multiple treatments will be required for some of us.
I am putting it out there for thought, as I for one could not afford the multiple costs.
Please don't bankrupt yourself and wait a bit longer, as the experiences of the providers is going to make a big difference. The skills and outcomes will teach all of us more about CCSVI and the best approaches to solving problems. It may not take as long as we fear!
Take care and be well.

I need a second procedure and can't afford to go back to Poland:( I am trying to get my UK dr to treat me instead.

I have always considered it likely. everytime i'm starting to feel a bit rough again, I ask myself if it is down to overdoing it, or if I am starting to restenose.
Been 3 good weeks, all in all loads better then before op. But not used to my new situation, so when im feeling good i have done a bit to much, and then spending next day in bed. At least I know its working now So then it is still hope, just down to money.
well its not just down to money, its also waitinglists. it is in fact quite annoying that its not possible to have it done locally, both mneywise and due to the practicalities. No direct flights to Sofia, Bulgaria, I don't know how quick the can see me again, and I don't know how much it will cost. very frustrating indeed.
After second time round it is normally muh more lasting i've been told.