My wife's turn next week in Poland - am I dreaming or not?
Posted: Thu Jun 17, 2010 7:56 am
Today happened something that changed the whole day; i got e-mail from Ameds. I was expecting that mail cause I was goingt to Poland with local man with MS. In that mail there was very very big surprise.. I had to read it twice to understand that they offered canceled place to my wife (who was in queue). And operation time will be next week, on 24. or 25. june.
I called my wife and of course we decided to take this opportunity. So i mailed back and now we are making all the needed arrangements, just bought fly tickets.
Lots of thoughs in my mind.. maybe the biggest worry is if they don't find the CCSVI. My wife dx is 3,5 yrs and she is doing quite well. No medication, MS symptoms, some minor, some not. She has been on BBD since dx and vitamin D levels have been quite high all the time (about 120-190 nmol/l).
But next week we'll know lots more. Im gonna make my own "little research" there, see everything with curiousity, talk to people after operation etc etc. I have been reading CCSVI over year now and this feels like.. unbelieveble, and fantastic! Next week I'm much wiser man about CCSVI.
ps. this is written today 15.2.2013. In spring 2010 I though that my wife is "doing ok", but after PTA I understood the difference and now I can say that she wasn't ok nearly 3 yrs ago. It was the difference in her, that opened my eyes.. to evaluate her symptoms. For example fatique, it was worse than I allowed myself admit. We had quite horrible fights in 2009/2010, cause I didnt understand her fatique. Since PTA, no more fights about that, thats wonderful.
I called my wife and of course we decided to take this opportunity. So i mailed back and now we are making all the needed arrangements, just bought fly tickets.
Lots of thoughs in my mind.. maybe the biggest worry is if they don't find the CCSVI. My wife dx is 3,5 yrs and she is doing quite well. No medication, MS symptoms, some minor, some not. She has been on BBD since dx and vitamin D levels have been quite high all the time (about 120-190 nmol/l).
But next week we'll know lots more. Im gonna make my own "little research" there, see everything with curiousity, talk to people after operation etc etc. I have been reading CCSVI over year now and this feels like.. unbelieveble, and fantastic! Next week I'm much wiser man about CCSVI.
ps. this is written today 15.2.2013. In spring 2010 I though that my wife is "doing ok", but after PTA I understood the difference and now I can say that she wasn't ok nearly 3 yrs ago. It was the difference in her, that opened my eyes.. to evaluate her symptoms. For example fatique, it was worse than I allowed myself admit. We had quite horrible fights in 2009/2010, cause I didnt understand her fatique. Since PTA, no more fights about that, thats wonderful.
In Poland we are going to Ameds, so unfortunately there is no Marian Simka. But I've heard good things from two finnish women - who were there a week ago. Im sure that we are in good hands.
I just want to take this moment to wish you a wonderful trip to a great country. I loved my experience in Poland, there are excellent doctors in that country. Here is to the beginning of a new life with your wife. 
..collecting anecdotic data.