Posted: Wed Jun 30, 2010 10:30 am
rssugg, great letter. It is very moving.
I just have one suggestion. Since there is so much ignorance about CCSVI, why do not you suggest some research articles they can read about CCSVI. You can for instance add the link to
http://www.fondazionehilarescere.org/eng/index.html
there docs will be able to find quite a few articles about CCSVI.
As a suggestion, if you do not think necesary don't do it, but probably you can mention some of the studies confirming the correlation between CCSVI and MS:
% MS patients with CCSVI (chronic cerebro-spinal venous insufficiency)
Zamboni 90% ( i've seen other websitest quoting that is 100%, i'm not sure about it) (University of Ferrara, Italy)
Zivadinov 55% -62% (University of Buffalo, USA, this study did not use Zamboni's doppler).
Mamoon 84% (Jordan University of Science and Technology, Jordan)
*Simka 97% (Department of Angiology, Pszczyna, Poland)
Kuwait 96% (Mubarak Al-Kabeir Hospital, Kuwait)
Roel Beelen 91% (OLV Hospital, Belgium)
*Simka is the one who has tested the most MS patients for CCSVI. Over 400.
Here Dr. Brandes explains why the English and German studies did not use the Doppler correctly to diagnose CCSVI
http://healthblog.ctv.ca/post/When-stud ... mples.aspx
I just have one suggestion. Since there is so much ignorance about CCSVI, why do not you suggest some research articles they can read about CCSVI. You can for instance add the link to
http://www.fondazionehilarescere.org/eng/index.html
there docs will be able to find quite a few articles about CCSVI.
As a suggestion, if you do not think necesary don't do it, but probably you can mention some of the studies confirming the correlation between CCSVI and MS:
% MS patients with CCSVI (chronic cerebro-spinal venous insufficiency)
Zamboni 90% ( i've seen other websitest quoting that is 100%, i'm not sure about it) (University of Ferrara, Italy)
Zivadinov 55% -62% (University of Buffalo, USA, this study did not use Zamboni's doppler).
Mamoon 84% (Jordan University of Science and Technology, Jordan)
*Simka 97% (Department of Angiology, Pszczyna, Poland)
Kuwait 96% (Mubarak Al-Kabeir Hospital, Kuwait)
Roel Beelen 91% (OLV Hospital, Belgium)
*Simka is the one who has tested the most MS patients for CCSVI. Over 400.
Here Dr. Brandes explains why the English and German studies did not use the Doppler correctly to diagnose CCSVI
http://healthblog.ctv.ca/post/When-stud ... mples.aspx