In Bulgaria now, stenosis found!
Posted: Sun Jul 11, 2010 6:28 am
This was a huge decision for my husband and I as I never have been diagnosed with ms. In over a 30 year period I have had only 3 known flare-ups and have been in one for a year this time. They were never able to quite figure out what was wrong with me but I was pretty sure it was ms since my first symptom was nystagmus with fatigue. I didn't know that way back then but 12 years later with my 2nd flare-up I heard that was a common symptom. This time around I went to a top notch ms specialist and he didn't seem to think it was ms.
I learned of ccsvi but didn't qualify for any studies without the diagnosis. Tried locally but not much there and managed to get on a couple lists that said they may be able to see me without the diagnosis.
I wanted to get to the bottom of this and Bulgaria offers all the testing with or without diagnosis.
I was a little surprised of the stenosis % I had.
95% blockage in the IRJ, 70% in the ILJ and 80% in the azygous.
The procedure was done yesterday and they said it is a good flow, not perfect but a good flow.
Not noticing much yet but lack of sleep for a week (2 hours last night) might play a role in that.
I didn't get Dr. Petrov, but the Dr. I had seemed very confident so therefor I was also.
There is a language barrier but not as much as I thought there would be.
I was warned that the procedure is painful from another patient, and it was somewhat, but it was bearable and I didn't need anything for the pain.
Overall, a good experience so far!
Kathy
I learned of ccsvi but didn't qualify for any studies without the diagnosis. Tried locally but not much there and managed to get on a couple lists that said they may be able to see me without the diagnosis.
I wanted to get to the bottom of this and Bulgaria offers all the testing with or without diagnosis.
I was a little surprised of the stenosis % I had.
95% blockage in the IRJ, 70% in the ILJ and 80% in the azygous.
The procedure was done yesterday and they said it is a good flow, not perfect but a good flow.
Not noticing much yet but lack of sleep for a week (2 hours last night) might play a role in that.
I didn't get Dr. Petrov, but the Dr. I had seemed very confident so therefor I was also.
There is a language barrier but not as much as I thought there would be.
I was warned that the procedure is painful from another patient, and it was somewhat, but it was bearable and I didn't need anything for the pain.
Overall, a good experience so far!
Kathy