This Is MS Multiple Sclerosis Knowledge & Support Community

I also am curious about the 1/3, 1/3, 1/3 ratio. Did he say anything about which groups of people fell into which ratio? Were age, length of time with MS. and type of M.S factors in the results as Zamoni seemed to find?

Being older (59) and having M.S. for 26 years (RR for 5, SP for 21), those are facts I would very much like to have in my decision-making process, especially because my MRV revealed a possible earlier sigmoid and transverese sinus thrombosis on the right side and my US revealed complete blockage of my RIJV and partial blockage on the left.

Thanks for filling us in.

Okay, the edited version makes me laugh!

Was that email an actual email from Dr. ******? It should probably be removed. Unless he gave explicit permission, docs don't usually like their emails posted.

And although I do not think FH did anything wrong since his doctor has been openly discussed here on a daily basis, I will save any detailed accounts of my liberation next month for after his irb approval. Which should be coming next month as well, from what I've heard.

(and now mine is edited as well!!!)
(yes, Pcakes, one month & one day away!)

Good morning Cece.. i did not know that your angio was imminent!.. very exciting and i can hardly wait for your post-posts.. !

and 'duck'!! .. you posted the docs name!!

We're all on the same team..

p.s. Flash.. heal heal ..good boy

michele25 wrote:WOW FLASHBACK

WHY WOULD YOU POST ALL THAT ?????????? SO THE BLANKEN A-HOLES CAN FIND HIM AND SHUT DOWN THE 6TH DOC? SO NO ONE ELSE AFTER YOU GETS A CHANCE , WHAT A GREAT SELFLESS PIECE OF IGNORANT TYPE OF PERSON YOU ARE, I WOULD DELETE ALL AND PRAY TO GOD THAT YOUR IN DETAILED AND PICTURED POST DID NOT GET IN THE HANDS OF GREED, BUT IF IT DID ,I HOPE YOU FEEL THE PAIN AND SUFFERING OF ALL WHO DIDNT GET THE CHANCE.

Is there any way we can direct new people on this forum to this thread? At least they can see how ridiculous and silly this forum has become before they waste their time atempting to pull some meaningful information from it. I am sure it was not Flashack's intention to blow anyones chance to be liberated(whatever that means). Don't worry there will be another money hungry doctor coming to your city soon that will open your veins for a nice fat sum of money. Michele25 your post causes me pain and suffering and since I am not religous I don't even have someone to pray to take it away.

Dude, do you realize how much trouble your causing for others? Quit acting like you know what your talking about.
Great that you received Liberation, stupid that you took it upon yourself to disclose so much inaccurate information.
You may need to reconsider what your saying. I know how you feel, but let's not allow feeling good lead to trouble for anyone else.
Sincerely, Duderock-Liberated June 25th. and not saying things I shouldn't.[/b]

First of all that entire contingent that posted on here has some Facebook group where they all talk about this stuff and then get all up in everyone's business ... that's why it's all of a sudden and all at once. It's happened on here before (for posts that were MONTHS old).

Then with the likes of some others who have to chime in and have never experienced nor are willing to look into CCSVI seriously yet continue to badmouth it like it's not possible ... IN SPITE OF all the success stories out there (how many success stories are there with other things - or stem-cells)??? Oh ... right.

I'm sorry Flash, your story was great, but I just wish this thread goes away quickly now ...

Moderators? Please help... so many newbies signing on here just to denigrate FlashHack, so many insults, accusations, etc. FlashHack is respected around here and from everything I've seen, it is against his nature to willfully harm anyone or cause trouble. I doubt he has ruined anything but he's revised his post despite all the existing links to "this doctor whom we shall not name" whose practice does "the procedure that we shall not name" and is affiliated with a "hospital that we shall not name."

It's right there on the community care website for all to see, direct quote: "At the present time, we are offering both diagnostic and endovascular treatment for CCSVI (Liberation Treatment) in patients with an established diagnosis of symptomatic multiple sclerosis who reside both within and outside of the Albany, New York area." Keep browsing the site for doctors' names and hospital affiliations. It's not shrouded in secrecy.

How about if people who don't agree with others do so with respect? Or how about not flogging people publicly (use the PM button at least). Because honestly you cannot earn any respect here this way. I fail to understand why we have to resort to name calling.

Best wishes for continued healing, FlashHack. Don't let the drama here get to you or cause you stress during this important time.

Pam

flash... u da man, congrats

FlashHack wrote:I have edited my post to hopefully placate some of the more nervous MSers. It saddens me to think that I have offended anyone, especially the doctor. The fact that MY IMPRESSION was that he was LESS interested in academic MINUTIAE than he was in HELPING PATIENTS was meant to be a high compliment. I cannot fathom how it was interpreted as anything else and I will not change it. The alternative is that he is just using us so that he can publish. I really don't think so.

God bless all the wanna-be editors. I pray that you learn how to press the PM button someday.

Your good and complimentary intentions were very clear Flash. To me at least. I am surprised that you were misunderstood.
But thank you anyway for editing ... it's nice to be sensitive towards the nervous MSers. I AM ONE OF THEM. Thank you. and keep getting better.

What's going on?!? Flash, please don't stop posting here or anwering our questions because of some harsh attacks. We need to learn from your experience. Although I'm just Getting To Know You, I want to be able to be able to support others and hear about their experiences without being subject to a personal diatribe.

Hang In There!

CCSVIhusband wrote:First of all that entire contingent that posted on here has some Facebook group where they all talk about this stuff and then get all up in everyone's business ... that's why it's all of a sudden and all at once. It's happened on here before (for posts that were MONTHS old).

Then with the likes of some others who have to chime in and have never experienced nor are willing to look into CCSVI seriously yet continue to badmouth it like it's not possible ... IN SPITE OF all the success stories out there (how many success stories are there with other things - or stem-cells)??? Oh ... right.

I'm sorry Flash, your story was great, but I just wish this thread goes away quickly now ...

I can show them to you if you want. There are lots of success stories posted on the web. I can show you where people rose from there wheel chair after receiving goats milk, can walk after receiving a stem cell transplant, and also people with MS who are healed by a touch on the forehead and a couple of Praise the lords. They are all succes stories I guess.

Glad to hear from you Flash. Glad you have done something for you and for all of us.

Thank you.

Flash - I'm hoping the positive comments to you far outweigh the negative ones! Your intent was good and you cannot control how others react - take care of YOU first! Positive energy and prayers to you!!

I cannot believe some of the nasty stuff that I have read on this thread.

Leave flashhack alone. He is simply sharing his story to those interested.
As for mentioning the docs name, well we have read that name here before somewhere too so its not like a secret being outed.

He has taken all those details out, so quit the attacks

Thanks Flash for posting your experience, I look forward to hearing what the next few weeks/months/year brings for you!! I'm not too far behind you.