This Is MS Multiple Sclerosis Knowledge & Support Community

Nunzio, that is a very interesting paper, great find! Thank you so much for finding it and posting it. I can't wait to hear what Dr. S thinks about it.

What should an IR do if there is no symptom of clotting, pain, swelling etc however the MRV picture presents M-T? Do they angio & conctrast nyway to make sure all is ok or just leave it alone?

they should treat imho

Sorry what is imho?

What to treat if there are no symptoms?
My IR said unless there are symptoms he
would not treat...has anyone else been
asymptomatic but treated the picture?

KDGO wrote:Sorry what is imho?

What to treat if there are no symptoms?
My IR said unless there are symptoms he
would not treat...has anyone else been
asymptomatic but treated the picture?

imho = in my honest opinion

not sure..... if vein is occluded... why not stent?

I've always thought imho was "in my humble opinion."

gtk :)

"good to know"

thanks

Cece wrote:I've always thought imho was "in my humble opinion."

LOL or that.... as soon as i finished, i knew someone would correct me ./... i was using poetic license... my letter b does not work... i had to cut and paste that b.. i usually use 8

I tried to let it go, say "what does it matter? humble, honest, it's all good" but as you can see I still posted it.

Yesterday I corrected Lyon who was correcting 1eye who was correcting someone else. That one amused me some.

KDGO wrote:What should an IR do if there is no symptom of clotting, pain, swelling etc however the MRV picture presents M-T? Do they angio & conctrast nyway to make sure all is ok or just leave it alone?

The idea is that if you have M-T then the return blood from the leg, instead of draining in the IVC it goes through collaterals to the Azygous vein and overload it so it cannot drain blood from the spinal cord properly.
So, if you have MS have M-T fixed, and have them check the renal vein too.
good luck.

Nunzio wrote:

KDGO wrote:What should an IR do if there is no symptom of clotting, pain, swelling etc however the MRV picture presents M-T? Do they angio & conctrast nyway to make sure all is ok or just leave it alone?

The idea is that if you have M-T then the return blood from the leg, instead of draining in the IVC it goes through collaterals to the Azygous vein and overload it so it cannot drain blood from the spinal cord properly.
So, if you have MS have M-T fixed, and have them check the renal vein too.
good luck.

Nunzio

imhb gtk

I will double check closer to home!

Thanks

I am hoping that I am diagnosed with MTS, the difficulty is finding a Dr/IR who is willing to carry out the tests without having to use private healthcare.

My right leg is now a complete dead weight. At least I am building up my arm muscles by constantly dragging my right leg behind me.

I am waiting to hear from my Dr regarding a refferal to get this problem fixed. I hope it won't be long.......

IHateMS wrote:

Cece wrote:I've always thought imho was "in my humble opinion."

LOL or that.... as soon as i finished, i knew someone would correct me ./... i was using poetic license... my letter b does not work... i had to cut and paste that b.. i usually use 8

That's good. Can you spell the letter c? how about k?

5 Week MT Update:

I went to my physical therapist, who does visceral manipulation, today. She has worked with me for about 15 years, so knows my body really well. She said that the MT stent is greatly benefiting the jugulars' and azygos' flows.

5 months ago, the left jugular had restenosed one day after ballooning in Poland. About two weeks later, the right one did. A month ago, I had them reballooned in CA, when the MT stent was put into place. They are now still wide open, working like they are supposed to.

My left leg, knee, and foot are stable. That whole leg and foot are a good pink color. My left leg, knee, and foot are not swelling, and my left knee is strong (it frequently gave way and collapsed, although it was good for a week or so after Poland).

The downside is temporary, so I'm patiently awaiting the end of it . The stent site is still healing and I'm having referred pain into my right hip. It cramps up and then hurts, so I have to use the crutches now because my RIGHT hip hurts However, it is improving, and compared to the neck and shoulder pain the early CCSVI stent people had, it is really nothing. The dr says it usually takes two weeks, but can take up to 6. Guess I'm one of the 6 week ones. Of course, I'm sooooo patient, I have a difficult time just letting things heal and not doing too much!

I had scored myself (1 to 10) on all my symptoms: before Poland - 168; right after Poland - 17; three months later - 55; and currently - 14.
Lots of good changes, just in time to return to my kids at school

Wonderful update Katie.

Now, if I only could find a doctor who would check M-T by catheter...