ccsvi overtreatment vs undertreatment
Posted: Sun Jul 18, 2010 3:11 pm
CCSVI undertreatment:
not having access to a doctor who will treat CCSVI
testing and diagnosis without treatment
MRV or ultrasound imaging performed incorrectly
missed stenoses in the azygous
missed membranes that are lifted out of the way during cath venogram
diagnosing no ccsvi based on mrv when cath venogram would show ccsvi
missed stenoses near where internal jugular vein meets subclavian vein
missed stenoses due to being among a doctor's first patients
stenosis found but considered too small or minor for ballooning
no anticoagulant prescribed and then having vein clot over
cath venogram done from right instead of left, missing May Thurner syndrome
lack of follow-ups or aftercare
lack of retreatment in the event of restenosis
lack of stenting for stenosis that does not respond to ballooning
venous stents not on the market
CCSVI overtreatment:
a stent if ballooning would work
anticoagulant prescribed if unnecessary
too strong of an anticoagulant prescribed
a too-long stent causing shoulder spinal accessory nerve damage
more stents than needed
"overlapping" stents as someone described, if unneeded or risky
stent migration
I know a lot of this is a judgment call. The doctors don't know, how are we supposed to figure it out? But we are navigating these waters, making big decisions....if you consider yourself to have been under-treated or over-treated, please share your story.
not having access to a doctor who will treat CCSVI
testing and diagnosis without treatment
MRV or ultrasound imaging performed incorrectly
missed stenoses in the azygous
missed membranes that are lifted out of the way during cath venogram
diagnosing no ccsvi based on mrv when cath venogram would show ccsvi
missed stenoses near where internal jugular vein meets subclavian vein
missed stenoses due to being among a doctor's first patients
stenosis found but considered too small or minor for ballooning
no anticoagulant prescribed and then having vein clot over
cath venogram done from right instead of left, missing May Thurner syndrome
lack of follow-ups or aftercare
lack of retreatment in the event of restenosis
lack of stenting for stenosis that does not respond to ballooning
venous stents not on the market
CCSVI overtreatment:
a stent if ballooning would work
anticoagulant prescribed if unnecessary
too strong of an anticoagulant prescribed
a too-long stent causing shoulder spinal accessory nerve damage
more stents than needed
"overlapping" stents as someone described, if unneeded or risky
stent migration
I know a lot of this is a judgment call. The doctors don't know, how are we supposed to figure it out? But we are navigating these waters, making big decisions....if you consider yourself to have been under-treated or over-treated, please share your story.