Raising money for CCSVI Research - Please read.
Posted: Tue Jul 20, 2010 8:40 am
Dear Friends,
My husband, Chuck, is a triathlete. He can be seen running or biking around town as he trains. What you may not know is that right now Chuck is training to do an Ultra Triathlon. This consists of a 4.8 mile swim, 224 mile bike, and then a 52.4 mile run. He is doing this to raise money for the research of a new treatment for Multiple Sclerosis called CCSVI.
CCSVI stands for chronic cerebrospinal venous insufficiency. Dr. Zamboni, an Italian vascular surgeon discovered this while trying to find ways to help his wife who has MS. He discovered that veins carrying oxygen-depleted blood down the neck or spinal cord where narrowed, blocked or even twisted. This made the blood back up in a way that may be linked to MS damage. But more research is needed, this is like the chicken and the egg, are the blocked veins what cause the MS, or is it caused by the MS. Either way, patients that have blocked veins and undergo an angioplasty have marked improvement with their symptoms.
This procedure is undergoing various forms of testing here in the U.S. Dr. Krolczyk, http://health.usf.edu/medicine/neurolog ... olczyk.htm is one of the neurologists who went to Toronto to listen to Dr. Zamboni speak at a conference. He was so impressed with the procedure and Dr. Zamboni that he wants to pursue this procedure through furthering the research here in Florida.
There are more then 2.5 million people affected with MS worldwide, and 350,000 are here in the United States. One of them is my mom. I have watched her struggle with double vision and loss of strength and energy. I have heard her wake up crying in the night because the pain is too great to sleep through. I felt her loss as she had to give up her job because her body and mind would no longer cooperate. The time for watching ended when her treatment options ended. Now, it is time to do something. Please help us do our part to find a cure.
To make a donation go to http://www.microgiving.com/profile/chuck and click on the "Donate Now" button. You can uncheck the checkbox to donate to MicroGiving if you do not wish to contribute to their operational costs. If you donate you will receive an email receipt that can be used for a tax deduction.
If you are unable to donate at this time you can still help spread the word by sending this email to your friends.
Thank you,
Jessica
Here are links for more information if you are interested:
http://ckemeny.blogspot.com/
http://csvi-ms.net/en
My husband, Chuck, is a triathlete. He can be seen running or biking around town as he trains. What you may not know is that right now Chuck is training to do an Ultra Triathlon. This consists of a 4.8 mile swim, 224 mile bike, and then a 52.4 mile run. He is doing this to raise money for the research of a new treatment for Multiple Sclerosis called CCSVI.
CCSVI stands for chronic cerebrospinal venous insufficiency. Dr. Zamboni, an Italian vascular surgeon discovered this while trying to find ways to help his wife who has MS. He discovered that veins carrying oxygen-depleted blood down the neck or spinal cord where narrowed, blocked or even twisted. This made the blood back up in a way that may be linked to MS damage. But more research is needed, this is like the chicken and the egg, are the blocked veins what cause the MS, or is it caused by the MS. Either way, patients that have blocked veins and undergo an angioplasty have marked improvement with their symptoms.
This procedure is undergoing various forms of testing here in the U.S. Dr. Krolczyk, http://health.usf.edu/medicine/neurolog ... olczyk.htm is one of the neurologists who went to Toronto to listen to Dr. Zamboni speak at a conference. He was so impressed with the procedure and Dr. Zamboni that he wants to pursue this procedure through furthering the research here in Florida.
There are more then 2.5 million people affected with MS worldwide, and 350,000 are here in the United States. One of them is my mom. I have watched her struggle with double vision and loss of strength and energy. I have heard her wake up crying in the night because the pain is too great to sleep through. I felt her loss as she had to give up her job because her body and mind would no longer cooperate. The time for watching ended when her treatment options ended. Now, it is time to do something. Please help us do our part to find a cure.
To make a donation go to http://www.microgiving.com/profile/chuck and click on the "Donate Now" button. You can uncheck the checkbox to donate to MicroGiving if you do not wish to contribute to their operational costs. If you donate you will receive an email receipt that can be used for a tax deduction.
If you are unable to donate at this time you can still help spread the word by sending this email to your friends.
Thank you,
Jessica
Here are links for more information if you are interested:
http://ckemeny.blogspot.com/
http://csvi-ms.net/en