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Loobie Doobie do's blog is updated
Posted: Sat Jul 24, 2010 12:34 pm
by Loobie
Updated my blog today with what we found at Stanford. More later, I have to get to a wedding reception!
Posted: Sat Jul 24, 2010 2:35 pm
by ozarkcanoer
Yes, hope is just what we need the most. Right now I am wearing a t-shirt that says CCSVI and HOPE and MS among many other words. I haven't had the procedure but knowing about CCSVI and the research and the possibilities gives me hope. Loobie, with Dr Dake and all his buddies cogitating over your problem, maybe that will give you an extra dose of hope !!! Thanks for your blog.
ozarkcanoer
Posted: Sat Jul 24, 2010 2:40 pm
by Katie41
Great blog! Thanks for all the info. Great minds collaborating hopefully will bring new successful treatment for you.
Posted: Sat Jul 24, 2010 4:26 pm
by Trish317
That made me laugh and made me cry. Thank you for your honest account of what's happening with you, Loobie. I pray that the doctors get the answers for you. My darling man was diagnosed with PPMS in 2007, and is just starting the journey to see if there are answers for him.
Posted: Sat Jul 24, 2010 5:18 pm
by eric593
Lew, you talked about the doc talking to others about whether to stent this narrowed area.
You didn't mention this, but why don't you just try angioplasty to see if it helps first? You didn't mention that it had ever been ballooned at all.
Posted: Sun Jul 25, 2010 4:01 am
by Loobie
Good question for sure about angio in this case. Since it is stretched (think of a thin piece of tubing being pulled until the inner diameter is shrunk), it is not a stenosis. So ballooning it would only bulge it out and it would go right back. The only way to keep this situation open, if it even turns out it needs to be, is to stent. Then I'd just have a 'permanent bulge'. He's also looking to make sure what it's stretched around doesn't have nerves between it so as not to have a pinched nerve. I learned that lesson once with my shoulder!